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Old 04-24-2014, 02:12 PM #1
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Originally Posted by Debbie D View Post
As NurseNancy stated, a symptom journal is an important tool to keep track of what goes on, and for how long. The only thing is...try not to get too obsessed about it. It can take over your days.
Eat good food, try to get some sort of activity and rest. Live life to your fullest. And be proactive regarding your health. If you feel that these symptoms and signs aren't being addressed by your general doctor, then see how you can get an opinion from a specialist.
Keep us up to date about what's going on, and welcome to NT. Lots of info, hugs and an occasional giggle or two as well here!
Thank you. You all seem like caring people!
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Old 04-24-2014, 07:25 PM #2
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Hey simple painless starting point- have your dr write a script for mri of brain & c-spine stating possible MS, numbness issues.
Takes 1 day for MRI, take copy of cd home & find out that night. I did.
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Old 04-25-2014, 12:44 PM #3
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Welcome to NT!

Keeping a symptom journal is a great idea! I would also add to what Nurse Nancy said that you want to put an end date or time to the symptoms. That is important too in the dx process.

I don't know what kind of insurance you have but if you need a referral to see a specialist, as most insurances seem to require now, get one from your primary care doctor for a neurologist. Ask around for a good neurologist in your area and if they see MS patients.

An MRI with and without contrast of the brain and spine is important. Please request that when you talk with your dr. Your primary care can set up the MRI.

Good luck as you go through the process of finding a dx for your symptoms. Please let us know how you are doing and what the dr. say.
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Old 05-01-2014, 12:15 PM #4
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Hey simple painless starting point- have your dr write a script for mri of brain & c-spine stating possible MS, numbness issues.
Takes 1 day for MRI, take copy of cd home & find out that night. I did.
Take copy of the CD home? If I request that at my MRI next week, will they likely look at me like I'm crazy or will they actually give me a copy that day?
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Old 05-01-2014, 01:46 PM #5
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Take copy of the CD home? If I request that at my MRI next week, will they likely look at me like I'm crazy or will they actually give me a copy that day?
They've given me a copy before and I didn't even have to ask. I think they probably will.
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Old 05-31-2014, 09:38 AM #6
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They've given me a copy before and I didn't even have to ask. I think they probably will.
Hi Pickle-

I had my most recent MRI of the brain and of the c-spine, taken with and without contrast, last fall at my local hospital.

I was immediately handed a cd of each film's results. For some reason I could view the brain films, but I just couldn't view the c-spine cd except for the "microfilm" pics - the teensy ones. I just couldn't get them to enlarge on my pc. It was probably because my pc's not the newest ... I'm still on Vista!

My last mri's before that were probably 8-10 years ago. I don't think anyone got copies back then. But I did request a copy of the written report after they were read back then. At that time, it seemed pretty depressing:

Brain film: Lesions (white spots) "too numerous to count". Scary quote.

But guess what? After many years with MS, not ONE of those numerous lesions have caused even the tiniest of my MS symptoms! In my case, my problems have all been caused by several larger lesions along my C and T spine. I've found that's typical for PP MS'ers.

Good luck to you. You've come to the right place for support, experience and knowledge about MS.

MsBluIs
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