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Old 06-01-2014, 12:16 PM #1
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Tilt table was part of therapy after laying flat in bed for 6 months after complete C7 spinal cord injury. Lay down for too long you'll pass right out even if you just sit up. Had to wear teds & stomach binder to keep blood psi up. Every day they'd increase angle, i'd just hang out there with walkman on. Ditched all that stuff a yr after I was released in 1990.

Also being paralyzed from chest down, my bod can't regulate blood psi/vessel size on most of my bod so I have to take Prazosin which stabilizes, keeps bp spikes from happening but lowers bp as side effect. My norm is 90/60 give/take.
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Old 06-02-2014, 05:47 PM #2
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Tilt table was part of therapy after laying flat in bed for 6 months after complete C7 spinal cord injury. Lay down for too long you'll pass right out even if you just sit up. Had to wear teds & stomach binder to keep blood psi up. Every day they'd increase angle, i'd just hang out there with walkman on. Ditched all that stuff a yr after I was released in 1990.

Also being paralyzed from chest down, my bod can't regulate blood psi/vessel size on most of my bod so I have to take Prazosin which stabilizes, keeps bp spikes from happening but lowers bp as side effect. My norm is 90/60 give/take.
Oh my Eddie..... you've been thru so much. Thank you for sharing your experience with me. I can't imagine how difficult it must be for you. I hate having low b/p. feels lousy. of course, having high b/p is also not good lol.
Now that I've heard from you and others on this board I feel better just kindof knowing what to expect.... thanks again.
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Old 06-05-2014, 10:27 AM #3
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I have an autonomic disorder (along with MS) which causes me to get dizzy & pass out too.

In case nobody told you- they don't stand you bolt upright really fast during a TTT, it really was a rather boring slow movement. I thought- "this is useless, its not going to show squat, just a waste of money" Then bam- symptoms hit and I puked, sweated wildy and passed out which was new to me. Woke to nurse telling me they were able to confirm diagnosis and MD would explain course of treatment in a few moments.
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Old 06-05-2014, 10:55 AM #4
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I don't think I like that test, Jane.
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Old 06-05-2014, 11:19 AM #5
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I have not had one done, but wanted to wish you luck on your testing. I'm glad others have chimed in regarding their experience.
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Old 06-05-2014, 02:07 PM #6
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Thanks Jane...that's kindof what I am anticipating. I know I shouldn't "project into the future" however I do like having a clue as to what to expect. I really appreciate the clarity with which you described your experience - lol truthfully I do! )))

I have a couple of weeks of nothing but tests more tests and doctors. But gettin' it done.

I will let you all know how it goes - its not til the 17th....

janet

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I have an autonomic disorder (along with MS) which causes me to get dizzy & pass out too.

In case nobody told you- they don't stand you bolt upright really fast during a TTT, it really was a rather boring slow movement. I thought- "this is useless, its not going to show squat, just a waste of money" Then bam- symptoms hit and I puked, sweated wildy and passed out which was new to me. Woke to nurse telling me they were able to confirm diagnosis and MD would explain course of treatment in a few moments.
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