been driving ok the past few days. Still hadn't gotten my hand controls.

Today I went to a new physical therapy thing. It's at one of the hospitals, and they call it a "gait and balance clinic". That was great. Till the end and the PT therapist told me to walk around their hallway until I couldn't do anymore.

what the heck? I did that, and then was too <swear word> tired to walk back to my car. I had to sit in the waiting room for a bit. Then once I got downstairs, I had to sit in that waiting room for a bit.

Driving home was interesting. I kept feeling like my foot wasn't finding the brakes or the accelerator. Made it home without crashing into anything. I was resting, and was fine until my mom started having a temper tantrum about being "trapped at home". So, I let my dad talk me into taking her down to the Village Inn on the corner. I don't have to get out on the busy streets to get there. Just have to get thru the neighborhood. Halfway there, my foot slipped off the accelerator. Then I couldn't find the brakes. Good thing I was going really slow. (popped it into park, and pulled up the emergency brakes)

I got to the restaurant, and realized that my leg was so tired, that I didn't think I could get into the restaurant. I could barely get out of the parking lot for the strip mall.

I asked my mom if she was going to be mad at me if I took her home. She said she wouldn't be mad, but she said it in a grumpy voice. Halfway back to the house (driving really slow, with the hazards on), she started in on being trapped at home all the time.

So she lied about not being mad.

omg, gee mom. So sorry that my serious health problems are getting in your way. And so sorry my dad's congestive heart failure is also causing you problems. We didn't complain like this when my mom was in a coma with West Nile virus two years ago. It would be nice if she could try to at least act like she loves us, or at least tolerates us. Really think right now the way she acts that she hates both me and my dad. (she verbally yells at him constantly)

I'm sitting here, very quickly becoming totally disabled, and she's whining because she wants to go get pie at Village Inn. (she doesn't drive) She has no compassion or empathy. I'm sitting here crying my eyes out from being so tired, and peeved at the MS for causing me problems...and all she can think about is that she's mad that she didn't get to go out to eat.

I drove home, and the whole way there, I was saying a special word that starts with the sixth letter of the alphabet the entire way.

plus, it's about 103 degrees outside (heat index...I think the actual temp is more like 97) I'm stuck in the house too because of the weather.

Does MS ever get easier to deal with? Because if it's always going to be this bad, I'm just going to stay in my room and hide from the world.

So sorry you had a day like this. I remember you going through all those long days worrying about your Mom. Does your town ahve a delieverys ervice. We have a company that has contracts with a lot of the restaraunts that you just call in the order and they pick it up and deliver to your door. I don't think it is a chain company, just a start up by a couple of guys who saw a need and figured out how to do it.

that's the thing. She doesn't want to eat at home. She wants to go out.

I was really too tired, and never should have said "ok" to taking her out.

Sorry you are experiencing this. I wish our family members were more understanding of our limitations.

When I went to PT last year my legs were so tired when the session was over.

I had to sit in the car for a while and let me legs recover before I could drive home and even then they were still a little weak so I had to be careful driving.

I hope the PT helps and you recover some strength and balance.

Erin, tell your Mom that you must stay out of the heat, as it makes
your illness worse. And, sometimes, it's not all about her.

I'm trying to stay in the cool today. My dad wanted me to drive him to a doctor's appointment earlier today. I ended up telling him I couldn't do it. My right leg just feels so weird.

He just got home, and wants me to take my mom to get something to eat, because they missed their meals-on-wheels delivery today. I'm not sure if I can do that either. My right knee seems to be ruined. It's stuck in an hyperextended position when I walk now. Which I'm pretty sure is because of the <swear word> <stronger swear word> AFO. My knee is starting to hurt too.

Wish I'd never put that stupid thing on two years ago.