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Old 07-23-2014, 05:15 PM #1
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It is a little bit weird to be happy about getting diagnosed with MS. I had the same feeling when my doctor finally diagnosed me.

Isn't it great that they at least believe you, and you don't have a bunch of doctors looking at you thinking you're a hypochondriac??? I hated that feeling. (they still do it sometimes tho, even with the diagnosis)

I'm happy I know what it is, but I'm still supremely peeved that I have it.
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Old 07-23-2014, 07:58 PM #2
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When I got my diagnosis I felt such relief. Finally someone believed that I was feeling what I was feeling. Someone didn't think I was just being a crybaby, or a hypochondriac. Go on a diet, they'd say. Get some exercise, they'd say. Learn to control your stress, they'd say. But finally I had proof. I felt vindicated.
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Old 07-23-2014, 09:05 PM #3
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Default Congratulations ... or my sympathy ...

I sort of know the feeling. Back in '95 I went to my PCP because I weakened when I was too warm and I was stumbling when walking. I also got that annoying electrical buzz down my back and leg when I looked down. (L'hermittes Syndrome).

About 10 years earlier I had experienced a gran mal seisure caused by a major blood clot in my brain that put me in a coma for several days and a month in the hospital. Turned out that stroke was caused by a blood disorder I'd inherited from my mother called Protein S Deficiency. It killed her at age
40.

I was worried I'd had another stroke.

Next came the MRI's, the LP and the EVP's. That made the final MS dx not as bad as the alternative.
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Old 07-25-2014, 02:59 PM #4
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We get it - we aren't really happy about having a sucky disease liek MS but are happy it is confirmed and "it" has a name. Almost like sweet justification for knowing for years that something was wrong. Limbo time was the worst; at times I felt like I had to fight to get cared for & properly diagnosed. Heck, I had one doc label me as hypochondriac housewife LOL

BTW- side benefit of official status: all those medical forms became so simple to fill out. Under the 'what's wrong' section all you have to put is 2 little letters. MS says it all

Welcome to the club nobody can leave - we will teach you the secret handshake and send along the Tshirt
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Old 07-25-2014, 04:58 PM #5
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Quote:
Originally Posted by jprinz99 View Post

Welcome to the club nobody can leave - we will teach you the secret handshake and send along the Tshirt

*******
I was promised a really cool jacket! I already have a blue scarf to tell the world I belong to the "Crips" (gang- red is The Bloods)
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Old 07-25-2014, 08:30 PM #6
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Woohoo! T-shirts! Thanks y'all, my doctor seemed to be tripped up when she was talking over the phone with me since like a dog begging for biscuits I was "yeah...yeah! Ehhheheeee" while she was solemn and throwing out... 'Unfortunatelies' but my friends in town and even my pain mgmt doctor did give me a big smile and a congratulations before remembering that it's not really good news...

Then I got condolences lol. Which makes me wonder how much of this disease shows who your friends truly are. Only a few people I know gave the standard sympathetic nod with the mutters of 'terrible shame', but they were all ones I considered acquaintances anyways, my imaginary friends didn't like their imaginary friends. Though it's not like I have a ton of friends, though I'm finding I have more than I thought. My mother has been telling people at her work, and laughs since the ones that really know me, all have the same 'that's wonderful!... I mean terrible but...' Reaction.

It seems I've become something of a local celebrity, once famous for painting penguins on her stores windows, now known as MS girl, able to make people question their humanity over their excitement for me. We'll see how they feel in a few years, how much they whine over my never calling, or coming out to play though I'm just happy that none of them feel too bad for me, or treat it like a death sentence, that to me is far worse than an excited hug over an answer before they like me remember it's not an especially happy answer.
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Old 07-26-2014, 08:24 AM #7
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I was happy when I got the dx...until the box of Copaxone was delivered. I cried as I opened the box and saw the syringes. it made the disease VERY real
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