[cedarsleeping]

Just joined up last week (I think). Have been battling weird symptoms that hang around for 3-8 weeks then leave since January 2013. First episode was trigeminal neuralgia. I am still undiagnosed. Last specialist (neuro opthamologist) shortlisted multiple sclerosis, NMO, infection such as Lyme, and vascular cause for all the weirdness going on. Waiting for a new set of mris, EMG/NCV and someone (my neurologist) to make a decision! Even if that decision is to send me in another direction rather than just more waiting ...

Right now ... dealing with muscle twitching, painful electric zings in both legs, recurring right side weakness, cog issues (worsened by the Lyrica I'm taking for the first two things I'm sure), and escalations of some other stuff if I get fatigued or overheated. It's been a weird ride for the last year and a half ... and if I focus too much on what I was able to do a couple of years ago compared to now ... well . This has been an emotional roller coaster for me, as it is for all of you.

I joined up with neurotalk because all along I've been getting "not likely ms" from various neuros and there are forums here for some of the other things that have come up ... (some of which have fallen off the list at this point).

Hope it's okay that I visit, even if I'm not yet dxed!

[SallyC]

Welcome Cedar, nice to met you. I hope your DX is not MS,
but then, there are worse things! You are welcome here, even
though you are unDX. I hope we can help you through your DX
journey.

Good luck.

[cedarsleeping]

Thank you for the welcome, Sally . And yes, there are worse things for sure ... first neuro thought brain tumour and I was very happy when my mri came back only showing measly little lesions (which everyone dismissed) versus the tumour he was expecting!

And ... your puppy is adorable!!!