[Snoopy]

Hello biddi4 and welcome to MSWorld

this doc said secondary progressive

I'm not sure why you discount the diagnosis of SPMS and question having PPMS instead

The majority of those diagnosed with MS are usually Relapsing/Remitting overtime it is not unusual for a person with RRMS to transition to SPMS. It is possible for someone to go years in the RR stage without even knowing they have MS. By the time the person realizes something is wrong it's possible they have already transitioned to SP. Secondary Progressive is typically know for progression whether slow or fast.

Regardless of what "type" of MS someone may have we can all deal with some of the same difficulties with mobility, abnormal sensations and everything else MS is capable of.

Spinal cord lesions are well known for causing mobility problems. This happens in all types of MS.

I have had mobility problems from the beginning, at the age of 24. My biggest challenge with this disease has always been trying to maintain my mobility. That for me means, working with a Physical Therapist when needed and an on going exercise routine. This has been the case for 28 years

In any case, it can take sometimes years for a Neurologist to determine where a patient falls (RR, SP, PP).

I'm not sure I helped with your question or even made you feel any better but please keep asking questions

[Kitty]

Hi Biddi4,

Welcome to NT!

We have a specific thread for SPMS and PPMS'ers but usually it's very quiet. Most of the MS'ers here just post on the MS thread or The Stumble Inn. You're free to post wherever you choose but the majority of our MS members post on the MS forum. I''ve included the link to the sticky thread for the SPMS/PPMS thread.

http://neurotalk.psychcentral.com/thread108560.html

[biddi4]

Thanks, people.

Ok, it's been a year since a doc that I respect and trust says it's ppms.
Even though I said early in the post that I wasn't sure, I actually do believe him.

My only sticking point is, why is the progression so slow?
I'm stuck with being limited in what I can do. But since I can still get around, life demands that I keep going.......which completely kicks my butt!

So, I wonder how others that have ppms now, felt early in their disease when things got more difficult. I want to compare things with them to see how long before it gets worse for me.

I'm in limbo because, I can still function but functioning really takes a toll on me and I don't know whether to push through and risk getting weaker too fast, or rest as much as possible in order to preserve any strength I do have.

All of what I described is what makes me just a little unsure about what I have.

I realize that there isn't much that can help any of the demyelinating diseases, but I kind of was the most accurate picture of what to expect down the line.

With everything that I have read, I can't find very many people that describe their symptoms like I do.

I will hop over to the other ppms page and see whats up there as well.