[Kitty]

Hi Biddi4,

Welcome to NT!

We have a specific thread for SPMS and PPMS'ers but usually it's very quiet. Most of the MS'ers here just post on the MS thread or The Stumble Inn. You're free to post wherever you choose but the majority of our MS members post on the MS forum. I''ve included the link to the sticky thread for the SPMS/PPMS thread.

http://neurotalk.psychcentral.com/thread108560.html

[biddi4]

Thanks, people.

Ok, it's been a year since a doc that I respect and trust says it's ppms.
Even though I said early in the post that I wasn't sure, I actually do believe him.

My only sticking point is, why is the progression so slow?
I'm stuck with being limited in what I can do. But since I can still get around, life demands that I keep going.......which completely kicks my butt!

So, I wonder how others that have ppms now, felt early in their disease when things got more difficult. I want to compare things with them to see how long before it gets worse for me.

I'm in limbo because, I can still function but functioning really takes a toll on me and I don't know whether to push through and risk getting weaker too fast, or rest as much as possible in order to preserve any strength I do have.

All of what I described is what makes me just a little unsure about what I have.

I realize that there isn't much that can help any of the demyelinating diseases, but I kind of was the most accurate picture of what to expect down the line.

With everything that I have read, I can't find very many people that describe their symptoms like I do.

I will hop over to the other ppms page and see whats up there as well.