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#1 | ||
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Member
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Snoopy,
The reason my diagnostic tests are on hold for a little while, is : I was having some serious acute transient vision failure some months ago. I ended up having to have a Temporary Artery Biopsy. { was negative for Temporal Artiritis) But ophthalmologist found large fast-growing cataracts, ( probably due to Prednisone use.) It was very strange that it should be Transient if it was only cataracts. My neurologist wants to wait until I have had cataracts surgery completed. Then he can evaluate my vision together with eye doctor. If any further problems, at least we can rule out cataracts being the cause. I have had one eye done, awaiting the second one next week. I will then have MRI and Evoked Potentials as well. I will ask my neurologist to reconsult the MS doctor. THE REASON I WAS STARTING THIS THREAD, WAS THAT THIS DESCRIBED SYMPTOM SEEMS TO BE VERY REAR, BECAUSE DOCTORS I HAVE SEEN DO NOT SEEM TO UNDERSTAND. AND IT IS A VERY DIFFICULT SYMPTOM OR SENSATION TO EXPLAIN. It was really good to hear that others have what seems to be the same sensation. And I was interested to know if you all had been told by doctors that it was from MS. Because I have not seen it mentioned in connection with any other diagnosis. ( Except for the neuropathy doctor said to me that " you will have all kinds of strange symptoms with autonomic and small fiber neuropathy) I thank you all for inputs. You have all explained it the same way as I am feeling it. Ohh the vibration and the buzzing is making me crasy!! It is different from all the pins and needles, burning electrical current up and down arms and leg and the numbness and the cramps and weakness of arms/hands on and off, And the "heavyness" of legs as if there were a tight rubber band around my knees. I know much of this is due to the neuropathy, I have not heard anyone with neuropathy say that they have vibration in the inner tissue |
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"Thanks for this!" says: | SallyC (08-10-2014) |
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#2 | |||
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In Remembrance
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Hang in there Synnove..
![]() Hope thing settle down for you soon.
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Synnove (08-10-2014) |
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#3 | ||
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to all of you above that replied, when you discussed these symptoms with your neurologist, did he/she say it was due to MS ?
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#4 | ||
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I might also add another unexplained symptom:
Balancabo, You mentioned you sometimes wake up with the symptom of vibrating. I have had a very strange scary feeling/symptom for a long time. I will wake up from sleep with an intense vibratory feeling usually strong around my torso/chest area. The feeling/symptom will be accompanied by heat sensation that slowly spread out over the entire body. I can "hear" the vibrating sensation in my head. I have had a long term ( 72 hours ) video monitored EEG done twice in the hospital. They did not find any seizure. So, I do not know what it is. I guess it might sound like a hallucination, and that I am completely cracy. But I think I am intact mentally. |
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#5 | |||
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I get that sensation in my lower legs and feet after hard workouts or long hard bike rides. I usually feel it when I sit down and take my shoes off. When I put my feet back on the floor, it feels like the floor is vibrating. I described it to my wife as feeling like I am standing on concrete next to a large truck that is idling or like standing on a concrete slab next to an air conditioning unit that is running.
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#6 | ||
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Member
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Yes, I get that sensation especially when I'm having a relapse or pseudoflare. I also get what I call itchy and twitchy, or itchy insomnia. It seems kind of related to restless leg syndrome. Like it's worse when I lay down and try to relax. I'll be starting to doze off, and my whole body will jerk and startle, and then I'll lay there and twitch here, there, and everywhere, with random itches thrown in for good measure.
Nerve diseases are nuts!
__________________
msarkie "Never try to teach a pig to sing. It wastes your time, and annoys the pig." |
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#7 | ||
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I sometimes get that vibration feeling. I ignore it. Our bodies are like an amusement park with all these weird things!
__________________
I cannot control my illness, But I can control my wellness. |
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"Thanks for this!" says: | SallyC (09-09-2014) |
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