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Old 08-21-2014, 09:50 PM #1
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default Sensory, or a real balance issue?

Color me confused.

I know I've talked about this one on here before. Since my last relapse (about 2 years ago now), I have this "thing" where when I put my weight/center of balance on my left side, or I reach with my left arm to do something (such as get a plate out of the cupboard), I feel like my left leg's "buckling" under me, or folding.

This came on during relapse, and took a good 3-4 months (or possibly more) to start to fade a bit. It has never completely gone away since it came on 2 years ago.

In the last month, it's back, only this time it's much worse than before. I don't fall (thankfully!) and I can walk without any issues. The worry is that, because the feeling I get from it is so pronounced, I could 'follow through' and tumble from feeling off-balance.

It's gone from a slight buckling/folding leg sensation to now being that feeling one gets when they're almost asleep, and suddenly feel like they're falling/dropping, and they bolt up or wake up otherwise with a jolt.

What on earth is this "thing" called?! Is there a name to it? Anyone else had this wax and wane (I know others have mentioned having something similiar happen).

It's not a new symptom for me, it's just a symptom that's progressively become worse over the last month.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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