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#1 | |||
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Grand Magnate
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wow rick, that is some inspiring story. i applaud you.
welcome to NT. i hope to hear more about you altho that is plenty. i'm an RN too. i worked NICU for 35 yrs and was dx'd with MS at 53. i spent 10 yrs on copaxone and i'm off it now. thankfully i've been stable and am independent. and, i still drive. again, welcome.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | Debbie D (09-02-2014) |
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#2 | ||
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Junior Member
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I have tried a lot of things but I don't have the courage to stop taking Copaxone. Because I am very fit my percentage of body fat is very low. Trying to find an area to inject is very hard and quite painful at times. Such a small price to pay to be where I am today.
My Dr. explained to me once when I asked why I get tired so early in the evening. He said, Rick everything you do your are forcing your mind to process. All those involuntary movements that the rest of us have are not there for you. So as the day winds down you my friend are pretty mentally exhausted. That actually made good sense to me and helped me cope better with my situation. I have also learned, believe me, the hard way that when MS speaks listen and rest. Tomorrow is always another day to do battle. I have learned to always listen and stay in touch with my body. |
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#3 | |||
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Senior Member
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I never stop being amazed at the remarkable ways people have found for dealing with MS.
Anyone who has had MS for any length of time is probably doing remarkable things just to get along in spite of the MS, IMO. Your perseverance is really inspiring. Then there are those who are good at persevering but have to learn when to stop because fatigue sets in, and we just can't do whatever it is we were doing so capably a minute or two ago.
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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#4 | |||
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Elder
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Thank you for your story. I sat here crying as I read it. Hope you don't go back and tell your amazing wife you made some one cry here today.
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#5 | ||
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Junior Member
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Yes my wife is truly amazing. She has always been my inspiration from the very beginning of my journey. She of course is my best friend and we are totally inseparable. She has always been the love of my live. Oh god don't get me started I could go on forever.
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#6 | |||
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Elder
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It is amazing when you truly listen (or in this case, read), how many stories we can learn from by allowing others to relate theirs.
Thank you for sharing yours. I agree that the 10% use of brain cells is a myth; mind is the builder, and whatever we create in between the ears is our reality. Congratulations on making a ton of lemonade from the lemons you've been given; keep us up to date!! We all have our survivor stories, and at NT we gain such support from each other... Keep on the road to being the best you can be, and blessings to your partner who travels with you and gives you support. They have an instant ticket to the front row in Heaven ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | SallyC (09-02-2014) |
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#7 | ||
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Junior Member
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For me and my journey with MS motivation and inspiration played a very important part. We all get down at times but I always tried to dismiss those feelings as much as possible. A very good friend sent me this video.
http://www.maniacworld.com/are-you-g...sh-strong.html I have probably watch this video over a 1,000 times over the years and it seems every time I do I learn something new about living life.
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Rick De |
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"Thanks for this!" says: | SallyC (09-09-2014) |
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