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#1 | |||
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Elder
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The sadness and sense of loss, along with the symptoms makes the disease overwhelming, but like others have said, you will find a new sense of normal, and things will get better. What made it better for me eventually was realizing that although I had all of my symptoms and had to take all of the medicines, I was much better off than many others.
Maybe your doctors should prescribe an antidepressant? Depression is very common in MS from either the effects of the disease, or just for dealing with all of the symptoms and the sense of loss. I have been on AD's since my diagnosis. God bless you! ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#2 | |||
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Grand Magnate
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when i first got dx'd (even tho i knew it was coming) i was shocked.
i remember the mental turmoil i was in so i understand what you're feeling. i started on copaxone (for 10 yrs) and then stopped it. everyone's course with MS is different and with some time and a little research you will find the course that fits for you. journaling may help with some of the feelings you have. i did have to stop working but today i'm independent, walk with a cane and still drive. there is hope. i like to say take 1 day and 1 thing at a time. try not to look down the road too far. just deal with what's in front of you. you'll feel more in control. one more good tip i would give anyone newly dx'd with MS is to listen to your body. if you're out doing errands and you're pushing and too tired turn around and go home. if you need to get a handicapped sticker for the car get it. it's not a defeat. it's a way to cope and conserve your energy for other things. i felt like i was giving in and defeated when i asked for my sticker. and when i started to use a cane to walk. but, really, it's a way to adjust to your MS and move forward. hope this isn't too much of an answer. i agree. stick with us. we'll help you thru whatever comes up.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#3 | |||
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Wise Elder
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I must be having a cognitive day today. I first read your thread title as Will I ever eat food again?
![]() You will have days that you will feel good. Those are the days many of us cherish. They are special days and can come as just one day, several days, or even a year or more. It just depends on you and how MS is effecting you. Once you get an idea and understanding of your MS, your days will become easier as you accept the disease and learn ways of coping with the symptoms, whether through medication or other means. Hang in there! We all know and understand what you are going through. ![]() |
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#4 | ||
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Junior Member
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Quote:
http://www.maniacworld.com/are-you-g...sh-strong.html I've probably watched this video over 1,000 times and I understand better after every viewing the lessons of life
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Rick De |
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#5 | ||
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Junior Member
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I have had to face the fact that I will never get better (I'm Secondary Progressive). All I have left is the use of my right arm and leg. I've had to give up my beloved knitting, leaving me with boxes and boxes of yarn I always thought I'd get to someday. Well, now "next day" is here and I can't hold a knitting needle in my left hand.
If I sound like I'm feeling sorry for myself, I am! Every day is a struggle to get beyond that and appreciate - even be grateful for - what I still have and the life going on around me. I meditate a lot, and that does help, especially with my chronic pain. I hope you can find a way of appreciating what you have right now, today. Your life is much more abundant than you realize. Take care, Arrietty |
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"Thanks for this!" says: | agate (12-16-2014), dmplaura (09-13-2014), ewizabeth (09-09-2014), NurseNancy (09-13-2014), SallyC (09-09-2014), Starznight (09-09-2014), Wolbachc (09-16-2014) |
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#6 | ||
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Member
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Short answer: No.
Unfortunately. Long answer: Take charge of your own wellness. Don't believe everything the doctors tell you - they are not God. Do your own research. Look into and try alternative healing, exercise, diet and nutrition - anything that may do some good and will most likely do no harm. Try not to lose hope that tomorrow will be a better day.
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msarkie "Never try to teach a pig to sing. It wastes your time, and annoys the pig." |
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"Thanks for this!" says: | KarenMarie (03-10-2015), Lynn (09-15-2014), NurseNancy (09-13-2014), SallyC (09-13-2014), Wolbachc (09-16-2014) |
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#7 | |||
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Member
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No, I am not walking in your shoes, I don't know what you are feeling right now, but please don't be negative, as negativity will affect you nearly as much as MS will.
I have had 8 years on Beta, six years on Ty, relapses, and lots of symptoms, and although I know I must be blessed to still be walking around - there are much worse things out there to be diagnosed with. Having (or developing) a positive attitude will change your life.
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#8 | ||
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Junior Member
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It's not that I don't appreciate the many blessings in my life. I just feel soooo sad. I hope life holds more happy times cuz this one is hard to take i.e. constant pain, debilitating fatigue, loss of income, friends and family who really weren't there for you to begin with (this may be a blessing but hurtful to accept). Thanks for everyone's message of hope. I'm trying to walk through the pain right now. Hoping to come out the other side.
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"Thanks for this!" says: | SallyC (09-16-2014) |
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#9 | ||
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Junior Member
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I am without words after viewing this video. Thanks so much for sharing such a powerful message with me. I will treasure it forever.
Carla ![]() |
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"Thanks for this!" says: | SallyC (09-16-2014) |
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