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Old 11-12-2014, 08:38 AM #9
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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Welcome to NT!! A lot of great advice, support, hugs and laughs too!!

Sorry you qualified for our little group...lots of great info here from those of us who have traveled the MS road.

I am on Sanctura for bladder urgency (or rather the generic form). I notice a great improvement when on it!

I tried Ampyra but I got stomach upset from it (which my neuro said is NOT one of the side effects...whatever. I felt better off of it).

I take Baclofen daily for spasticity. It works best for me. It helps with my gait a bit as well.

I hope that your DMD works to slow down the MonSter...give it several weeks so your body can get used to it and allow it to do it's work. It was a sad day when I got my first delivery of my DMD...made the diagnosis real for me.

Try your best to live as normal a life as possible...don't let this disease be your identity! I know it can be difficult when the symptoms are interfering with your everyday functioning...I keep a symptom journal; it helps me keep track of what's going on without constantly thinking about it.

Eat right, try to get some form of exercise or activity daily, and rest when you can...in other words, live life to the fullest. Having children is a hidden blessing; they take our minds off of what is going on occasionally...my grand babies are a real treat and make me get down on the floor (gingerly).

Keep us up to date, and know that we have lots of hugs for you...
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