hi judy, i'm a judy two (ha, ha...get it?)

uh, my sense of humor is waning.
is it possible that the baloon inside your bladder isn't blown up enuf?
when they insert the catheter they then blow up a small balloon to hold it in place so it doesn't slip out.

i'd check about that. you might also call the company that supplies your catheters. they might have some advice.

i also know of a procedure where they put something in from your abdomen; something like a colostomy. i wonder if that might be better and help with infection. i don't really know anything about it tho.

please let us know what you find out.

Hi Judy., think of you often and pray daily for you..
Hope you find a solution for your MSesy problem..

I am a nurse also and agree with Nurse Judy. How long has tis been going on with the catheters leaking and if has not been very long could it be that this particular batch of catheters are faulty since it really sounds like the balloon is slowly leaking or wasn't inflated enough. have the nurses ever tried to inflate it more when they come during the one month period of time that it was inserted. And yes, there is a procedure where a catheter is inserted into the abdomen. When I was working it was jsut done as a same day surgery procedure although it only lasted a couple of hours or less. But that same type of catheter is inserted into s small hole that the urologist makes in the abdomen. This was only used for patients for patients they knew were going to be forever long term. Now Judy mentioned a procedure something like a colostomy. That is a whole different thing. It is a surgical procedure in which the tube that goes from the kidney to the bladder (making the bladder non functional)is rerouted to the outside of the abdomen and you wore a collecting bag on your stomach which you had to empty when you saw that it was full.

You are very right, it is a mess and it shouldn't be happening. Could it be that you are having bladder spasms which is squeezing some urine out each time you have a spasm?

Have you called your doctor to tell them what is happening? I'd do that if you haven't.

Best wishes for a quick improvement. I hate this disease also!!

Thank you all soooo much for taking the time to answer trying to help me find a solution to this disgusting problem. Unfortunately I've either tried or at least discussed them....yes, with my doctor.....my pcp. Haven't tried the neuro, but think I'll give him a try too.

I believe the urologist will discuss having a suprapubic cath. put in. That's what some of you were mentioning...the same day procedure. At least that would eliminate the irritation in that......"nether region".....hmmm. The home health nurses are able to change them too. From what I understand, if it doesn't work or makes a bigger problem, the hole will close up on it's own. Sounds kind of creepy, but at this point I'll try just about anything.

Was that other procedure an "illiostomy"? My mother had a colostomy years ago and I remember talk of it also. Now that I'd try to avoid if at all possible because it's so permanent.

The nurse had talked about inflating the balloon more, but I don't know if she ever actually did it. One time when it felt like it was coming out when I was transferring back to my chair from the toilet, it did! Obviously the balloon had deflated then!!! I occasionally have bladder spasms, but take medication for them, plus I definitely can feel it when they happen.

For some reason, the past couple days haven't been as bad. Still leaking, but not as much. Just another MS mystery I guess. Maybe my bladder is positioned differently since I did have three C-Sections. My doctor always said I was a challenge!!

I'll keep you all posted if anything changes and also after my urologist appointment. Thanks again, so much, for all your help. Even if we all don't have the exact same thing, we do "get it" and try to help.

Thank you, thank you, thank you!!!