Update: I've mentioned this in some other threads , but thought I'd bring this one back up.

May 4th is my start date! Genzyme is helping quite a bit with the cost more than I expected them to which is nice (though it's still very expensive).

I am not sure anyone else here has been on it or is even considering this? I find that odd because I know there are a LOT of people out there who are.

As far as support goes, I found a FB group for Lemtrada (there's a FB group for everything!!! I was in a great Tysabri one as well!). The little family there is amazing and so supportive and I feel so good about my decision.

I talked with my neurologist and was advised to wait before getting on it because there is no real track record of people being on it and the side effects. I have secondary progressive and had hopes it would stop the progression. I was also told it costs $100,000. So conflicted as to what to do

Sorry msbelle
I wish you well !
Have you and or your neuro talked about Rituxin (new type of this med should be out of trial - Ocrilizimab (sp?) My neuro at the RMmsC thinks highly of Retuxin. I am on Tysabri for over 9 yrs-so I'm not changing

Good luck !
Linda

I am on it and have been for 7 months, I feel no changes I went to Nero and have started the paper work for Lemtrada.