[trixlynn]

Hi,
My name is Tracy and I live in beautiful BC, Canada.

On Feb 1, 2015. I started having pain and loss of vision in my right eye. This began a series of appointments with opthalmologists, neurologists and my GP.

I have been diagnosed with Optic Neuritis, and probable MS.

I have previously had Thoracic Outlet Syndrome, and bilateral rib resections.
My GP blames everything on fibromyalgia, and says there is no pain in MS.

So far I have had a VEP, but have not received the results yet. I am waiting for the hospital to schedule an MRI.

I am frustrated and at a loss.
Since the ON started I have had a few other things crop up. I am not sure what to do.

My Dr and I get along really well, but we disagree on quite a few things. (No suggestions to get a new GP, it is impossible here)

I have been treated for years for bladder retention, by having my urethra dialted. That, however doesn't help and doesn't address the leakage isuues. I also recently developed sporadic bowel leakage as well.

Now, I have ON symptoms in my left eye as well as my right. I went through three or four days of balance issues. I have fallen several times. ( Mostly up stairs) I have developed tingling from my waist down, in the tip of my tounge, my lips and fingertips.

I get bad spasms in my back, calves and feet.

I am exhausted, I'm in bed 11 hours a night. I get up 5 times a night to pee. The spasms wake me up. Arghh.

I don't want to go to my GP, he blames everything on fibro. Since I have a long pain history and have experience in the medical field, I am in danger of being labeled as having "Facticious Disorder".

The problem is, until I have my MRI I can't get into see my neuro.

Needed to get this off my chest.
Sorry for the long first post.
Tracy