Hope it lasts for you too.

Last time I had steroids for something that was not vision related, it didn't work. (usually only take steroids for vision related MS stuff)

The one time I tried steroids for a non-vision thing, it was when my hands went numb in 2012. Movement of my fingers was weird then too. Steroids didn't seem to do a thing for it. My hands are still numb. I created my own PT for it. I crocheted, knitted, and did typing tests on the internet to try to help any movement issues, and keep my hands moving. That seemed to help some.

I did have some cortisone shots in my shoulder last year for the not-MS-related frozen shoulder, and was told that wouldn't do anything for the MS. It did seem to help my energy for awhile, and it helped the pain in the shoulder from the frozen shoulder.

I've been having a lot more issues lately with walking. I'm about to contact my neuro and see if he'll Rx some steroids, or a round of IVSM, or I'm going to switch neuros. Just afraid to switch neuros, because they'll probably want an MRI, and I'm claustrophobic and don't want to crawl into a tube where it'll be uncomfortable, and I'll end up emotionally traumatized from the claustrophobia AND be in pain from not moving.

I'm supposed to have an MRI but they are waiting for the authorization from Humana and I think the weekend timing of all this is slowing it down. I was really hoping to be able to get the MRI while at the hospital already receiving the IVSM. That's not going to happen, though.

The IVSM seems to be helping the numbness in my right hand a little bit. I can write better....or at least legibly....so that's a positive.

The grandbabies were over yesterday and they both zoomed in on the bandage covering the IV on my arm so that was interesting trying to get them to leave it alone! They don't miss anything new.

you don't really want to be in an MRI machine while hooked up to a steroid infusion. Depending on how long you'd be in the machine. I only say this because IVSM makes me have to go potty very very very often.

I noticed I'm going a lot, too. I was hoping it was just from the IVSM and not another UTI coming on. Hopefully this will help with curbing any UTI's from coming back. I think I set a record for having them this past year.

I go to the Neuro tomorrow and have a few questions for him....like how long the effects from the IVSM will last and when it kicks in. I'm thinking someone told me or I read it somewhere that you feel a little worse before things get better.

I'm hoping I can get some sleep tonight. There's a great show on PBS tonight playing all the hits from the 70's and 80's and I'm really enjoying the trip back in time. These are all the hits I remember from high school.

If you're drinking the water that was suggested, and on the steroids. That's probably the main reason for frequent potty breaks. But this is good. It keeps your kidneys nice and hydrated, and healthy while on the steroids. Steroids are rough on the body. You need the fluids.

Really? Bed at midnight and up at 3 AM!! The cats are loving it but I'm afraid this lack of sleep is going to be my downfall. At least i can nap during the day if I feel the need. I'm really trying to just take it easy and not give in to the energy rush that usually follows the IVSM. My seasonal allergies are acting up so I'm sure that's part of the reason I can't seem to sleep for very long at a time.

Ah, Kelly...wish I'd been on here when you had your questions beforehand.

I had an IVSM last month. One thing my neuro told me was to keep sodium intake below 2500mg/day, as you retain water with solumedrol. It's tricky, because lots of processed food has loads of sodium.

My sxs were reduced all of 6 days before they returned after the infusion I don't know why, but this always happens for me.

As for the lack of sleep, it is temporary...try to drink some relaxing tea before bed, and read something boring. if you awaken during the night, I would suggest not lying there waiting to fall back to sleep. Get up and read or do something boring like watch the weather channel. Always works for me

I hope that your sxs keep getting kicked down for a long time