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Old 09-30-2006, 09:33 AM #1
alena alena is offline
Junior Member
 
Join Date: Sep 2006
Location: Czech Republic
Posts: 8
15 yr Member
alena alena is offline
Junior Member
 
Join Date: Sep 2006
Location: Czech Republic
Posts: 8
15 yr Member
Default MS symptoms - back from hospital - still hopeless .

hi all, I am glad to find this "new" forum again .. (I did not post much to the previous "original" BrainTalk forum because of my "not sufficient" English - but I liked being there even when only browsing around and reading ... so it is nice it is back again ...

there is a few new things about me .. as I have just posted in "General Health ..." forum (sorry to bother you here again, but I have no idea of where I belong to .. ) ..

I have had many MS symptoms for a couple of years, getting worse, but no attacks (fatigue, muscle weakness, tingling, pareshesias, L´hermite, dizziness, poor balance, constantly moving/wawing/oscillating vision + some "non-MS" symptoms (as my docs say) - swolen lymph nodes, myoclonus/muscle jerks, tinnitus, constant "burning" feeling in my muscles/on my skin (??) (in hands, around stomach, neck) ..etc.
I have been treated as a hypochondriac for about 9 years - trying to explain, that I really cant help walking like drunk, not being able to hold a pencil after a while etc. - the docs kept telling me all my symptoms are only "psychological" ..

this summer I finally found a new neurologist, who sent me to the hospital - so I finally went through MRI (brain, cervical spine), EP, Lumbal Puncture etc .. but - the results did not prove MS - as my doctors said -

I "only" have elevated levels of IgG antibodies / 4 oligoclonal bands in CSFluid .. + my blood tests showed some autoimune problem ..

besides this, the only evidence, that the docs can see, is that I am off-ballance and that I have no reflexes on the left side of "abdomen area" (I do not know the proper name of the reflex, that should be present when skratching with e.g. pencil on the "around stomach" skin)

everything else (MRI, EP ..) is clear ..

I know that diagnosing process is not easy, especially with MS - but what I am hopeless about is that neurologists say "you have not neurological problem" - but - all other doctors keep sending me back to neurologists again saying "your symptoms are neurological" ..

well - last week my GP sent me to hemato-oncologist to rule out "myeloma" or "lymphoma" or whatever like that .. but the oncologist also told me, that my symptoms are typical for MS - and - as he said - even if the results would prove the lymphoma or whatever - this would not explain my neurological symptomatology ...
SO - I am lost again ..

so - please - has anyone any suggestions / experience ??
thank you, a.
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