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Old 06-28-2007, 10:44 AM #1
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Thanks Cheryl, for your report. I'm glad it went well for you and I hope, right along with you that the Touch program runs a little more smoothly, in the future.

BTW, what are the positive reports. How does Tysabri seem to be working for PwMS. Are they reporting good results or not?
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Old 06-28-2007, 11:02 AM #2
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Good work, FG, it's great to have representation from someone who isn't busy organizing their own raises in pay.

Sal, most, I'd guess 90% of those I've heard from on Ty have had a lot of positive experiences with it. I can think of only two out of about 25 who feel it's not working. I haven't heard any directly negative reactions to it. Mind you, this is just from a small handful of patients with whom I communicate.
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Old 06-28-2007, 12:03 PM #3
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Sally

This wasn't that kind of conference. It was a conference to discuss RiskMAPs in general. So, I cannot really comment on that.
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Old 06-28-2007, 12:54 PM #4
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Kudo's to you FG!!!! I shouldn't be surprised that you went to the conference.... Just like you to always be a front runner on trying to help others... I take my hat off to you!

Hey, who took my hat???? Hugs to ya Cheryl!
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Old 06-28-2007, 05:37 PM #5
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Well done!!!!! So proud of you!!!!
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Old 06-30-2007, 11:32 AM #6
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Quote:
Originally Posted by AfterMyNap View Post
Sal, most, I'd guess 90% of those I've heard from on Ty have had a lot of positive experiences with it. I can think of only two out of about 25 who feel it's not working. I haven't heard any directly negative reactions to it. Mind you, this is just from a small handful of patients with whom I communicate.
Thanks, Cindy. I appreciate your answer. I just haven't heard too much since Tysabri started back up. I heard wonderful stories, when it was first out and now...not much.

I assumed that the hype was bigger than the bite. In other words, Tysabri is just another MS Modifying Med. and not any closer to a cure than the rest of them.

Considering all this, the expense is rediculous and sinful. They should be ashamed. I hope that in the near future, a cure or at least something to stop MS in its tracks, will be found.

I've given up, for it to happen in my lifetime, but I hope it will happen in yours.
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