Howdy Folks!

I had my third infusion last Thursday morning. I truly believe that Tysabri is now doing it's magic on me!! Let me lay it out for you and you will understand:

I worked all night last Wed. night, 8 p- 6 a.

Got out of work, went to the grocery store after stopping for coffee. Did my grocery shopping 7-7:45.

Went to the infusion center and endured the 4 tries for a vein ( I have garden hoses for chrissakes!) Demanded a phlebotomist come and do it if they missed again, finally sunk it on the fifth try!

Did the infusion. What was supposed to be 8 a.- 10 a. or so ended up being 11:30.

Went home, 20 mile drive, packed the car, packed coolers, packed camping gear, packed clothes, packed the man, and set out for a bluegrass festival in NY, a 6 hour or so drive. Leave home at 2 p.

Got about an hour away, the man realizes he has left his wallet and his insulin behind.

Turn around and go home. Decide after a small disagreement with forgetful one that I am sleeping for a few hours before I try to drive again.

Wake up at 10 p, get back in car and drive to festival. Raining buckets and not allowed to drive to camping area until rain stops. Finally get up hill at 12 pm and set up tent and camp. Forgetful man has never camped before and has no idea what to do. Set up camp on my own while he watches and whines about every thing I am doing wrong.

Leave him at campsite and go to show with my chair, cooler, rum, coke, ice, snacks and umbrella. 45 degree uphill climb to natural ampitheater where show is. Actually make it up hill and set up chair, cooler, umbrella, make a huge drink and sit down and drink and sing and laugh for the next 10 hours. Ignore said man when he comes and joins me apologizing.


Stumble down hill to campsite at end of day's show and collapse. Airbed develops leak. Wake up and pump bed back up after rolling man to floor and laughing maniacally when he rolls out tent door. Leave him out there and go back to sleep.

Wake up in morning, hung over and aching. Drink 4 cans of cheap grape soda and start day all over.

Repeat this X 3 days. See a lot of people I haven't seen in years. No one mentions MS and neither do I. Have a great time despite all the hassles. Swear to do it again next year.

Drive home on Sunday night. Do all the driving because the man is "tired" Get home after 1 am. Note that ankles are like stumps with swelling from walking, driving, whatever. Ache all over, head to toe.

Next day, unload car, do laundry, wash all dishes and go back to work from 8p-6a. Check schedule at work and find that 3 months ago I signed up for 4 OT shifts in addition to my reg shifts. Now working until next Thursday when I go ON VACATION for 20 days.

I am not sure I can take how good Tysabri is working!!