Oh Holly...

Oh Judy did you mention the "bloodsucker" ?

FG

Please give Holly a big from me. I hope she is feeling better soon. On the bright side, she has even more compassion and love for you, if that is possible.

I am most concerned about my employment.

I work for a human services agency that has a large presence in my community. Their whole reason for being is to support people with disabilities.

Unfortunately, at times, I do not feel as if that extends to their staff, especially in the case of my new supervisor .

I needed a chair I could get OUT of, not the foot high baby furniture in my building. I requested one chair. No response.I ended up going to HR and breaking down, crying about a stupid chair and finally explaining WHY I needed the chair. I had one that night, in the style I requested, delivered by HR. The evil gnome ignored my request.

I had to apply for IFML to cover any trainings or meetings I might miss if they fall during my monthly infusion. This might happen once every six months or so...or it did...before...BUT now, since the evil gnome knows I have IFML in place, suddenly EVERY meeting and training that pertains to me is on the one day of the month I cannot be here and the worst part about it is it's my day off anyway!! GRRR!!

I'd like to do this interview. I think it would help a lot of people. And I would love to take this woman down a peg. She'd have a whole lot harder time torturing me if I am out of the MS closet, so to speak...

Thanks for the replies

Flygirl, Thanks for your story on being outed. Sorry to hear ya gave poor Holly Bell's Palsy Did they want to do an MS workup?

MSAcorn, I told my friends and family. It's a need to know basis kind of thing with me.

Taffy, I ain't nevah done nothing in a small way...did I ever tell ya I am 6'2?

AMN, Good idea about using DM as a stunt double!! Boy we could send her in there and just start garbling in the mic, confusing her and then have her say...this IS a face of MS...LOL

Judy, I think in my own way I would like to hold up my employer under the very large magnifying glass of the public. Picture the lawsuit reported in the local paper?

Rotflmao --- DM is 5'1" she'd need a very tall chair to stand on!

RW-- Go ahead and shove it to the supervisor who doesn't seem to be able to practice what she preaches. Do the interview with pride! Also remember-- it can benefit the families and people you work with. They KNOW you feel and understand the word "struggle."

My big OUT has been my spiffy new "disabled" license plate.
When there are only so many lime green VW Bugs in the world, the world knows it's you!!!!

'S all good-- I get the best parking spot at Target!!


Bethany

Hi Everybody. I hope you are all well today.

This is the Month I am In Love. I was married on Sept 27, 1969 in the Methodist Church and then again on our 10th Anniversary, in the Catholic Church...for good measure...LOL. We would have celebrated our 38th Anniversary on the 27th.

I loved him dearly....not always, but for most of our 35 years together, we were happy. We had our ups and downs, but had fallen in love all over again and were each other's best friend, in the years before he died.

I was truly blessed and am thankful for all the years we spent together. He is now my guiding spirit.

Happy Anniversary Sal!!

Awe, Sal, what a nice post.

Okay today, it's mild and breezy, and overcast. It has been right tolerable all the day. I think my hand is calming down some and I'm very glad for that. I'm starting to get pretty keyed up now, three days and it's the open road. There is that bittersweet element of it being my last, but heck, I am one blessed chick and I haven't missed much. Besides, it will be a lot cheaper to just stay home and stare at the walls.

I'm packing up a few last things and I'll be good to go.

I am wigging-out-excited because the iPhone will go down $200 this month. Now all that's left is for the stupid exclusivity with AT&T to get dropped and I am SOOOOOO INNNN!!!!! I ain't changing providers! Apple also introduced the new iPods, the Touch iPod has a browser and is Wi-Fi capable right out of the box. I want one, but I want the iPhone more!

Happy Anniversary Sally!!! I'm sure you have lots of good memories! Even with my divorce, there were alot of good times to remember over the 24 years.

Taffy -- 6'2"!!! Wow! If you happen to fall, that's a long way down! My 5'6" was bad enough!

Beth -- How is Holly? Awwww...I didn't know dogs could get Bell's Palsy either. My father had it when I was just a kid and I used to bring in all my little friends to watch him NOT close his eye! Ah -- the innocence (sp?) of youth!

RW -- It's quite a coincidence that you're in the Human Services field. My last "great" employment was with the local Assoc. for Retarded Citizens whom you would think would show some compassion. But NO -- for the residents yes, but employees no. When I was hospitalized for depression, from the MS, that was the end. GO FOR IT!! Front page news indeed!

That reminds me, when I applied for unemployment while waiting for the SSD to kick in, usually you can't get it if they "fire" you, but the people at the unemployment office thought it was such a lousy thing for them to do, they granted my application. Wooo Hoooo, the ARC had to pay me after all!!

AMN -- Glad you're numbness is feeling better -- hope it continues for your trip. Maybe all the adrenalin from your excitement will cover up whatever's left!

AV8 -- From your pilot's viewpoint, what do you think the chances are that Fossett is still alive? Seems so strange after all the bigger risks he took during his lifetime, that a smaller, local thing could be his downfall. Too bad anyway.

Well, the steroids are done and I'm back in the yucky withdrawal now. Was so weak this morning, I could barely talk. Then the "bloodsucker" came for a vial of my red stuff and had some trouble getting it to stop bleeding. Apparently the steroids somehow increased the coumadin level so no pill today. My same vein was used three days in a row being she couldn't even find one in my right arm to put the needle in.

Hopefully in a couple days, I'll be back to my "good normal" -- whatever that is!!

Take care all!

Sally

Happy Anniversary Month. What a wonderful connection you and dear hubby had. Very rare indeed. You've got your memories and I'm always up for a story or two.

Thanks for sharing.