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Old 09-06-2007, 01:36 AM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I am most concerned about my employment.

I work for a human services agency that has a large presence in my community. Their whole reason for being is to support people with disabilities.

Unfortunately, at times, I do not feel as if that extends to their staff, especially in the case of my new supervisor .

I needed a chair I could get OUT of, not the foot high baby furniture in my building. I requested one chair. No response.I ended up going to HR and breaking down, crying about a stupid chair and finally explaining WHY I needed the chair. I had one that night, in the style I requested, delivered by HR. The evil gnome ignored my request.

I had to apply for IFML to cover any trainings or meetings I might miss if they fall during my monthly infusion. This might happen once every six months or so...or it did...before...BUT now, since the evil gnome knows I have IFML in place, suddenly EVERY meeting and training that pertains to me is on the one day of the month I cannot be here and the worst part about it is it's my day off anyway!! GRRR!!

I'd like to do this interview. I think it would help a lot of people. And I would love to take this woman down a peg. She'd have a whole lot harder time torturing me if I am out of the MS closet, so to speak...

Thanks for the replies

Flygirl, Thanks for your story on being outed. Sorry to hear ya gave poor Holly Bell's Palsy Did they want to do an MS workup?

MSAcorn, I told my friends and family. It's a need to know basis kind of thing with me.

Taffy, I ain't nevah done nothing in a small way...did I ever tell ya I am 6'2?

AMN, Good idea about using DM as a stunt double!! Boy we could send her in there and just start garbling in the mic, confusing her and then have her say...this IS a face of MS...LOL

Judy, I think in my own way I would like to hold up my employer under the very large magnifying glass of the public. Picture the lawsuit reported in the local paper?
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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