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#1 | ||
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Member
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Over here from the PN forum and came across this:
http://www.independent.co.uk/life-st...-a6818771.html |
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#2 | |||
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Grand Magnate
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This is one of those articles that I wait holding my breath waiting to see if anything else emerges. There's was a little buzz on my Internet news pages but I am thinking "Didn't Johns Hopkins do something similar and Red something did it and what happened, I've never heard." Having gone thru other buzzes like Liberation, eating worms, stem cell implantation in varied places in the world I hope my mother-in-law and various family members don't skim the articles and feel MS is securely cured (My Mother-in-law breathing a sigh of relief her son may be freed a little from his wife). But I'm no Newbie, I've been to this rodeo before. I won't let my breath (or hopes) out until I see how this thing progresses. Yes, I think anything is too late for me but I hope for future generations.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#3 | |||
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Wisest Elder Ever
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Have any clinical trials been done here in the US? The one that was just done wherever this was only had 20 people involved. If they'd have one here in the USA I'd volunteer for it!
Sounds like a promising procedure if they can manage to get it off the ground. Thanks, David, for sharing!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | SallyC (01-22-2016) |
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#4 | ||
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Member
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My pleasure. I know someone on the PN forum who has had just stem cell treatment here: http://stemcellrevolution.com/. I'd like to try it (we suspect my small fiber neuropathy has an autoimmune cause or has autoimmune involvement), but can't afford such expensive and not covered by insurance treatment. The basic practice of taking out the immune system and transplanting stem cells seems quite obvious for all sorts of immune system problems that it's frustrating that things are so slow going. If I find anything about trials in the US, I'll definitely post it.
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"Thanks for this!" says: | SallyC (01-22-2016) |
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#5 | ||
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Junior Member
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Dr. Burt at Northwestern in Chicago does stemcell transplants for ms and other autoimmune as well. I believe it has to be done before the progressive stage unfortunately.
This link is to the study: https://clinicaltrials.gov/ct2/show/NCT00273364 This is to his homepage: http://www.stemcell-immunotherapy.co...ant.html#types There is a facebook page as well. |
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"Thanks for this!" says: | SallyC (01-22-2016) |
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#6 | |||
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Member
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http://www.bbc.com/news/health-35065905
" All those on the trial have relapsing remitting MS, where patients experience attacks - or relapses - followed by periods of remission. The treatment involves intensive chemotherapy, so patients are warned that there are side-effects such as nausea and hair loss. Paul Kirkham, another MS patient, said he was glad to have had the transplant but added: "It does knock you. I'd rather have done 10 rounds with Mike Tyson." The transplant involves a one-off cost of around £30,000, which is comparable to the yearly cost of some MS treatments. "
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ditched the witch . |
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"Thanks for this!" says: | SallyC (01-22-2016) |
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