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Old 12-28-2015, 04:27 PM #1
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I got upset when an old neurologist (of course I use him no longer) gave me Antidepressants for my MS discomfort when I showed no signs of clinical depression. He never followed up with any questions and I took them long enough so if they worked they would have, then discontinued them. He never told me anything, just gave them to me!! My problem was he handed them out like they were candy. Our society in general acts like here's a pill for anything wrong. They do help some with MS pain but HE NEVER followed up.
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Old 12-28-2015, 09:06 PM #2
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Hi Kitty,

I ran across a MSAA publication quite some time ago, it was written in 2008. Not sure it will be helpful for you, but I thought it was interesting.

I have an exaggerated startle reflex but mine is due to PTSD and not related to MS.

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EXAGGERATED STARTLE RESPONSE (HYPEREKPLEXIA) IN MULTIPLE SCLEROSIS: REVIEW OF 30 PATIENT-REPORTED CASES
Exaggerated startle response or hyperekplexia (also known as hyperexplexia) is not recognized to be associated with multiple sclerosis (MS). The purpose of this report is to increase the awareness of this symptom in MS. Thirty-seven patients self-reported "startle response" after an inquiry in MSAA's "Ask the Doctor" column in The Motivator. Most cases of hyperekplexia in the medical literature are related to hereditary neonatal hyperekplexia and post-traumatic stress disorder (PTSD). Hyperekplexia involves an overactive autonomic arousal, which creates difficulty discriminating and interpreting stimuli. The primary treatment reported in the literature has been clonazepam. No MS patients [responding to the survey] received clonazepam. Thirty of the 37 respondents completed the survey. Startle was usually precipitated by auditory (82 percent), visual (17 percent), tactile (six percent), or a combination of stimuli. The average age of onset of MS symptoms was 26 and the onset of startle was 35. Less than 20 percent of MS patients had startle before their MS, which suggests previous trauma (PTSD) is not related. Other data include: 67 percent have the relapsing-remitting form of MS; 93 percent reported multiple episodes per day; 90 percent have an exaggerated startle response at least once a week and half of these experience startling at least daily. Hyperekplexia was variously described as frightening, embarrassing, painful, dangerous (falling), and disruptive to personal and professional relationships. A total of 73 percent had not had discussions with any healthcare professional, and 17 percent reported that their doctors stated that startle might be related to MS, but had no therapeutic suggestions. In conclusion, hyperekplexia is an under-recognized but potentially treatable symptom of multiple sclerosis. Increased recognition and understanding will promote treatment options.

— Jack Burks, MD, Miriam Franco, MSW, PsyD, Andrea L. Griesé; Susan Wells Courtney; John J. Masino
http://www.mymsaa.org/publications/m...research-news/
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Old 12-28-2015, 10:43 PM #3
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I used to have that. It was because the people around me had me on High Alert all the time. Once I got those people away from me it went away. Haven't had it now for years.
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Old 12-29-2015, 06:18 AM #4
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That's why I'm pretty certain it's just another MS symptom. I'm not in a stressful situation or one where I need to be on high alert. Just wish there was a way to make it stop without having to take yet another med.
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Old 12-29-2015, 10:23 AM #5
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Thanks Snoops

I'm o Buspar for that. Not working too well

Doc is also giving me Ritalin, hoping it will work in reverse on me???

I'm a Guinea pig
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Old 12-29-2015, 11:27 AM #6
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Wow thanks for bringing this up, Kelly...I've been experiencing this as well lately. Once I'm off of post-surgical pain meds, I'm going to keep track to see if it stays. DH thinks I'm overreacting, but I can't help it
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Old 12-29-2015, 08:46 PM #7
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I don't really have many ideas on it, other than it's something I've always had. I can't cook toast without popping it up myself or I spaz for a moment (jump and shriek like a bomb went off instead of a bagel). People speaking when I'm not expecting it from the side or from behind will cause a jump and the occasional swing, like some unknown assailant is asking me "What's up?" instead of a friend or family member.

Heaven forbid anything should touch me unexpectedly... to my body That Means WAR! And the little ball of lint better come prepared for a total smack down. My DH (still married me) came over one day while I was reading a book, I didn't hear him come in, didn't hear his combat boots thumping across the floor, didn't hear him call me... It was a realllllly good book... He grabbed my leg... I swear my head hit the ceiling as my other foot clocked him upside the head, had him on the floor with one hand choking him and the other ready to knock him out before I calmed down enough to realize it was him.

Sad thing is... I've never been in the military, or armed forces... Never been in any kind of life or death situation where someone was attacking me (aside from usual tussles with siblings) I hated jack-in-the-boxes from the very first one I ever encountered at age 1. And shrieked like a banshee and came up swinging from being touched unexpected straight out of the womb.

It's taken a lot of work to dull that side of me. I try very hard not to get wrapped up in books. To be aware of my surroundings and ready to run into people I'm acquainted with out in town. And obviously I have a jack-in-the-box ban at my house and always ensure my toasters have a cancel button. Still for the things you can't control, like a calendar falling off the wall. I shriek, and freak, and then just pretty much laugh at myself for it. So long as I don't attack anyone I figure it's a good heart health check on occasion.
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