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#21 | |||
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Elder
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I am back in the study as of Aug 30th. Did the 3-day IVSM, 30 day washout, and I got the "I am ok" sign off from my neuro here and it was faxed to the study doc.
Now we repeat vaccine visit number 4. I have to resign all the consent forms, etc. Vaccine #4 on Aug 30th, and the schedule resumes from there. I guess I put quite a fly in the ointment so to speak! But the LP I had definitely confirmed an exacerbation. It's really taken me almost a month to get back to my baseline. This one was bad, at least from my point of view. Still fighting fatigue, but I think that is due more to the hot hot hot weather we've been having and all the smoke in the air here. Idaho has over a million acres of land currently burning - we've had several red alert air quality days. The states smells like one big campfire. It's just been awful and I am trying to work --- ![]() I will keep you all updated.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#22 | ||
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Member
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I'm going to pull something positive out of this no matter what. Yes it sucks that you had an exacerbation, but I think it's really cool that it took so long. You're normally on a quarterly schedule even on meds and you stretched out this one and got a lot more time b/w exacerbations. Yea Tovaxin. I can tell you are doing better, believe it too!
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#23 | |||
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Wise Elder
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Greta's right, FG, that was a long stretch compared to before. You can't be on placebo. Now don't go ticking the study doc off again!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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#24 | |||
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Magnate
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Greta and AMN are right. You guys can stop choking me now! No, they are right, seriously, you are doing much better!
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#25 | |||
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Wise Elder
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Quote:
You're no fun! ![]()
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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#26 | |||
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Elder
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Don't pick on Taffy, she's a nice person! She likes chocolate (did I say that???)
You guys are right, I got a whole 6 months, almost 7 since the last flare. I am not complaining. The less steroids I have to do, the better off I am! ![]() And I WILL NOT TICK OFF THE study doc anymore. Repeating that 100 times! Where's DM to beat that into me??? ![]()
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#27 | |||
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In Remembrance
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I'm proud of Ya, Cheryl and did I ever thank you for your pioneering for the rest of us? Well, Thanks!!
Changing subject, but I was just wondering if you talk to Andrea/spooky anymore? I wonder if that Utah mine cave-in is close to her? How is the little scamp...still doing well on Tysabri? OK, back to our regularly scheduled Tovaxin stuff. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#28 | |||
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Elder
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Quote:
To answer your other question, I hadn't heard from her in months, and then out of the blue about 2 weeks ago I got a short message from her and then no reply. So, I know absolutely nothing. The short message was nothing - just -- I found you, how are you doing -- told her I was ok, not lost, and how was she? Nothing further...so dunno... ![]()
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#29 | |||
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Elder
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Cheryl,
I'm glad you're feeling better and ready to have your next vaccine soon. I hope it will be smooth sailing for the rest of the trial. ![]() ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#30 | |||
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Elder
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Quote:
How are you doing on Ty?
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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