Hi Everyone,

I have been stopping in from time to time. I was a fit in follow up with my neuro today. We were following up on what my PCP called a complicated migraine because of the neurological symptoms I was experiencing. I woke up from a nap and I was numb on my left side, this was about a month ago. I am now putting words into my sentences that don't make sense. I have primary optic apathy, severe ringing in my ears, and the list goes on...lol

My neurologist is a very understand man. He told me happy birthday (I will be 50 this Sunday). Two years ago, I had an EEG on my birthday. Today, he finished at the computer and turned his chair and looked at me and with compassionate eyes told me, "Be prepared for a change in diagnosis." He is re-visiting the MS testing and sending me for Carotid ultrasounds, VEP, Brain Cervical & Thoracic MRI's...said we may have to do another LP. He really feels that I don't have Fibromyalgia now and feels bad that I have been suffering for 2 years with a FMS diagnosis. He was thinking that the spots on my brain onthe MRI were from smoking (I quit in 09) or from diabetes (I was dysmetabolic and only officially became diabetic 11/2015 and I already have my numbers back to prediabetic.

I think the idea is a little tougher now than before. I just became comfortable with living with FMS and dealing with it. I keep thinking about a song "Here I go again". LOL

Hi bddouglas,

Well, I was surprised when you didn't receive a diagnosis of MS. I really thought that was going to be your diagnosis but glad I was wrong.

I hope this time around your testing points you and your Dr. in the right direction.

I imagine it is

An early Happy Birthday to you and best wishes on your up coming testing

Hi BD.

So sorry for your misDX. That stinks after all This time.
I hope your Doc can come with an answer soon for you.

Happy early Birthday, ya little kid you!

I was dxd with Fibro way back in the 80s...docs kept attributing sxs to fibro for years.
neuro still says the lesions are in atypical places for MS. I still wonder if it is indeed fibro. I'm not currently on any DMD as sxs are "mild."

Hope your birthday was special...hope you get some definitive answers either way