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Explaining MS (and other Fairy Tales)

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Old 05-13-2016, 07:52 PM #11
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I used to enjoy going out but it's so difficult for me now I just don't want to.

My friends don't understand it which I kinda get but my neuro?? I wasn't at all sorry when he left the practice.
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Old 05-14-2016, 05:33 AM #12
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Quote:
Originally Posted by Frog42 View Post
My friends don't understand it which I kinda get but my neuro?? I wasn't at all sorry when he left the practice.
I know, right? You'd think out of everyone they'd understand.

I changed Neuro's several months ago and I don't miss my old Neuro one bit. He loved to tell me "MS is not a painful condition". OK, maybe not for you since you don't HAVE it but I will testify that it is painful sometimes. He had the gall to tell me once that people with MS have "convenient pain". I'm not going to argue with him or try to justify myself and my choices.
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Old 05-14-2016, 01:31 PM #13
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I like my neuro a lot. He won an award for humanitarianism and is considered a MS speciaist neuro at Johns Hopkins.
He also does Clinical research at an immune place. Yesterday when I saw him I thanked him for not being an @$$#%(& like some doctors I read about on NT. I know I'm very lucky. He's wonderful in that he doesn't think he can cure me and give me no false hope. So I can talk to him. He helps or refers me out.
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Old 05-15-2016, 02:33 PM #14
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Kitty, I think my old neuro must have set up a practice with yours.
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Old 05-23-2016, 07:21 PM #15
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Why do neuros say that MS is not painful?!?! I've experienced that too. I have never heard anyone with MS say they never experienced pain due to their MS. I don't know where these doctors get that information that MS doesn't hurt.
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Old 05-24-2016, 03:22 PM #16
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I don't understand how a doctor can say that MS doesn't cause pain! I would just have to tell that doctor to spend a day in my shoes. I am so thankful that I have empathetic doctors. My neurologist was almost in tears when he told me I have MS. My primary care has told me to tell people to kiss my foot if they wanted to doubt my pain. I just feel truly blessed with my care team.
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