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Old 07-15-2007, 06:46 PM #31
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It's an OUTRAGE, I tell ya!!!!

Everywhere I go, I have to sign my life away on a Protection of Privacy notice... Just signed one at the VET!!! Can you freakin believe that????

I am mad for ya, Cin... You go get 'em girl....

I can see that Mac is in hot pursuit.....

*did you make Roma say "Fritoes''???? She's so cute....
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Old 07-15-2007, 08:10 PM #32
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Quote:
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Can I ask you a question? *whisper....why is your October apt next week? (I often lurk around here! *grin)
My doctor changed it when she got the fax. She wants to monitor for changes.
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Old 07-15-2007, 08:33 PM #33
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Ok then, a real reason. I thot you were "funning us".
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Old 07-18-2007, 07:41 AM #34
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Cindy,
Screw SS! oops, did I say a bad thing . I still get mail from them, I am now going to do the return to sender (at their expense). I'll see how long it takes to get off their mailing list
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Old 07-18-2007, 01:25 PM #35
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Okay, the latest installment on this. I saw my neuro today (sadly, it seems I still have MS) and the gals told me that they had filled out the request form to be notified in the event of this situation.

So, in some convoluted way, this was a legitimately authorized communication. I am still unhappy about it but there is little recourse.

For the record, my neuro is totally cool with it, and though I sensed that she didn't want to say it in so many words, I believe that we are in total agreement. She resisted full agreement with me that the decline was caused specifically by the C, but admits that it probably isn't doing me any good.

She has made her final decision now, I am officially SPMS. Oh well, I suppose I'll have to go have all my monogrammed towels changed now.
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Old 07-18-2007, 02:19 PM #36
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She has made her final decision now, I am officially SPMS. Oh well, I suppose I'll have to go have all my monogrammed towels changed now.
OH NO!!! Not the Towels.

Seriously, though...So Sorry about the new handle.
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Old 07-18-2007, 02:25 PM #37
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Matching pillow cases too???

I am glad that you and your neuro are on the same page Cindy. But the change in status...well... I know you hate that! Time for some serious drinking?
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Old 07-18-2007, 02:37 PM #38
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Dang it Cin! Sorry about the news....

But, I don't think you were one bit surprised...

(glad I had my gift to you monogrammed w/AMN)

I'm w/FG..... ahhhh, Belly up! Jager??? Pour!
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Old 07-18-2007, 02:41 PM #39
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Meh, so what? It's not like some kind of big shock, ya know?

At least now I can try other drugs and things. We're even talking Tysabri again.

If anything, it confirms to me that I need to do everything I've ever wanted to do, and soon. So, I reckon I'm in for quite a lot in the near future.

Tomorrow I'm going to meet an old friend from high school for the first time in *choke* 27 years. She found me out of the blue and I'm really excited to see her. I'm sad that she'll see me this way, but at least she knew me when I was an athlete and a musician, so there are still some witnesses out there.
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Old 07-18-2007, 02:43 PM #40
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Quote:
Originally Posted by daisymay View Post
Dang it Cin! Sorry about the news....

But, I don't think you were one bit surprised...

(glad I had my gift to you monogrammed w/AMN)

I'm w/FG..... ahhhh, Belly up! Jager??? Pour!
GT, dm, make mine a double. Let me just throw back the rest of this whiskey... oh, and the bottom of my margarita... where's the other half of that Provigil?
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