FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#21 | |||
|
||||
Member
|
Hello Cindy and Cheryl,
Yes, us Brits come up with some zingers at times, and because we sound so proper over here, people don't know how to take it! ![]() I'm Catholic, and Mike is Methodist so when you think about it, we can always find a holiday to celebrate. Now, if anyone were to even think about asking your religious views in Great Britain a bloody war would and could break out. Wait, it has! ![]() Go give them a piece of your mind, Cindy. It feels like "Big Brother" is in your medicine cabinet. The next thing we will come to know is they will start asking us about our bowel habits. ![]() ![]()
__________________
"I didn't know he was dead; I thought he was British" Woody Allen . |
|||
![]() |
![]() |
![]() |
#22 | ||
|
|||
Member
|
What a stunning breach of privacy-- or did you sign a paper when you started Copaxone allowing the doc and the pharma company to chat about you?
I have been amazed for three years now how cozy the doctors and the pharmas are: some more than others. But the cozyness between the docs and the abcr pharmas exceeds anything I've ever seen in other areas of disease. Forget about suing. Its so expensive to sue a pharma that an atty wouldnt take your case unless you are dead or extrememly damaged. Your damages are negligible and not worth suing over-- but plenty worth chatting about on the internet ![]() |
||
![]() |
![]() |
![]() |
#23 | |||
|
||||
Wise Elder
|
No, no, BBS, I have no intention of pursuing litigation. I plan on beating them down on every turn. The art of paper assault can be deadly when done with a certain panache.
![]()
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
|||
![]() |
![]() |
![]() |
#24 | |||
|
||||
Magnate
|
Cindy, so sorry you have to be the one to deal with this one, but someone's gotta do it!...it may as well be you, sort of like a new mission
![]() I am dealing with SS every week. They continue to send me huge envelopes full of crap in the mail even though I have asked them to stop. They have called and sent little surveys with free gifts attached to them asking questions that are NONE of their business. The money consumers pay for the drug that they peddle is going to wasteful trash and harrassment of the consumers themselves. I have a real beef about privacy and how hard it is to opt out of the train once you decide to get off. The policy and addresses for opt out programs are well hidden in PILES of pages of information. In most cases opt out programs usually require that you write to them to opt out instead of calling or emailing. To think that SS called/faxed/wrote to ANYONE'S Dr. without the patient requesting it is an outrage. To report PERSONAL information to that Dr. without the patient requesting it is bordering on criminal and if they are getting away with it through some marketing clause then that loophole needs to be closed NOW! Go after them like a junk yard dog Cin!!!! ![]()
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
![]() |
![]() |
![]() |
#25 | |||
|
||||
Wise Elder
|
You've got it, RW. That's the other thing that irks me bigtime. My brother is a printer's rep (a MAJOR printer) and I'm constantly pestering him to get those accounts, he'd be set for life!
I'm eager to hear what my neuro has to say about this, but more interested in what her staff has to say. They're the ones who deal with it directly and I value their opinions a great deal. I did speak to our friend, Roma, yesterday (she's great!) and as a nurse, she was also appalled by this. So, I'm fairly certain that something is stinky here.
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
|||
![]() |
![]() |
![]() |
#26 | ||
|
|||
Member
|
Quote:
Yah. That's what I did for a while when Biogen did that thing to me. It was the only way I could even the level of the playing field. Despite the damages, atty's said it costs a fortune to sue a pharma and you have to be near dead in order to be awarded enough to cover the costs of the suit. |
||
![]() |
![]() |
![]() |
#27 | |||
|
||||
Elder
|
Quote:
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
![]() |
![]() |
![]() |
#28 | |||
|
||||
Wise Elder
|
She's just terrific! She's only doing her vitamins and Cymbalta and doing simply wonderfully! She has also done a pretty intensive battery of PT and swears by it. Oh! And she walked up a steep hill that she had been avoiding until Donald talked her into it-- no problem. It was so much fun, we jabbered the whole afternoon away.
They're not thrilled with the heat snap, but they are in one of those thermal pockets where is hasn't been all that bad. I was so glad to hear her sounding so well!
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
|||
![]() |
![]() |
![]() |
#29 | |||
|
||||
Elder
|
Quote:
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
![]() |
![]() |
![]() |
#30 | |||
|
||||
Young Senior Elder Member
|
Can I ask you a question? *whisper....why is your October apt next week?
![]()
__________________
. |
|||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Unbelievable... | Creative Corner | |||
Dave Price an unbelievable inspiration | ALS News & Research |