Hi kell.steve@bigpond,

I'm not understanding something, I guess. You mention having "multiple lesions on the brain" as shown on an MRI and yet there is no MS dx. These were some other kinds of lesions, or they weren't clearly MS-type lesions?

Usually if there are multiple lesions on the brain and they're in the locations favored by MS and look like MS lesions, the neurologist will give at least a tentative MS dx. Maybe the clinical exam didn't show any signs even though you'd been having symptoms? Even then you'd probably be tentatively diagnosed with MS.

As TxBatman said, you may be classified as CIS for clinically isolated syndrome. It would be useful if you could get a copy of the doctor's notes on your office visits and any reports about the MRI. If you're listed as CIS, many doctors now will start prescribing one of the MS disease-modifying drugs because it's been shown that these are most effective if started early.

You might not want to worry about whether it's PPMS or RRMS just now. You may have heard that PPMS is a "worse" form but actually many people with PPMS live out a normal life span and aren't so severely afflicted as you might think while those with RRMS have to wonder when the next relapse is coming their way and how bad it will be.

These categories (RRMS, PPMS, SPMS) are a bit fuzzy anyway. The experts aren't always sure which category you're in.