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Old 06-26-2016, 12:33 AM #1
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Currently on copaxone, safest drug but terrible to take. I get bright red welts from it that last for 2-3 days that then look like bruises afterwards for another couple of days. It burns like a mother going in, that lasts for at least a couple of hours, and I can't take it in the morning or the unlucky limb is out of commission for the day. But then as much as I don't like it, looking at the side effects of the other meds... I'm not quite ready to switch meds yet, if I even switch meds, I might just forgo further DMDs.

Anyways, I can't do the injections in my hips and the Doctor just said to skip those and move on to the next site. So if you can handle the injections everywhere else your doctor just might say to skip the legs and inject everywhere else. I honestly can't think of any alternative sites, though I was told there were, they never said what the sites were.
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Old 06-26-2016, 04:27 PM #2
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i used copaxone for 10 yrs. i did the daily injection. i rotated all the sites & tolerated it well. i wasn't a good candidate for the interferons.

i was dx'd at 53 & was very stable. my neuro said i could stop it & i've now been off several yrs & tolerating that well. i've been very lucky. i've had my challenges but am stable. the main reason i wanted to stop was because i had to use insulin & competing for sites was too difficult.

everyone's MS is different. keep bugging your dr for answers to your Q's. all you can do is try & see how it works out. be your own best advocate. stay informed & you'll make the right decisions.
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Old 06-27-2016, 08:27 AM #3
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I only lasted on copaxone for avout 5 and a half months. Had the injection site reastions that others have mentioned. Baseball size welts that hurt a lot for a few dyas and then itched like crazy for seveal days. I quit because I experienced several immediate post injection reactions. Sfopped taking about 6 in that time period, I had 2 in one week and my neiro said enough. After the reacions I also experienced a fever for several hours. I also had allergic reactions to betaseron and tysabri. I have been dx for over 9 years and was only on dmd's the first year. MS symptoms are stable.
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Old 06-27-2016, 11:31 AM #4
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I took it for a few years...I got concave marks at injection sites that haven't gone away after being off of it for years.
Not on any dmd and I am doing very well!
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Old 06-27-2016, 11:33 AM #5
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I was on Copaxone for about 3 years. I used Benedryl gel smeared around the injection site right after each injection to control the burning/itching. I never had headaches or anything as side effects other than injection site pain and burning right after the shot. That was worst in the first couple of months and got better over time.
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