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Old 09-07-2016, 12:46 PM #1
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I hope you are doing better and have talked to your neurologist again today. The pain may actually be bladder spasms. They are not fun. I'm sorry your PCP wasn't much help at this time. Hopefully the urologist will be able to shed some light on what is going on. Have you seen your gyn regarding some of the pain? I do hope you start feeling better soon.

Judy gave great advice!

Like Kelly, I don't feel anything when I have a UTI. Most times, I don't even know I have one and is found incidentally other than MS symptoms being vague and coming and going.
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Old 09-07-2016, 02:35 PM #2
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Thank you everyone.

The only pain I get with a uti is a burning pain in my back, right at my kidneys.

I'm in the process of trying to switch my neurologist to someone who hopefully understands all of my conditions.

Hopefully I will get some help that way.

I will make sure nobody ever gives me Dilaudid again. It gave me a horrible headache, made me shaky and weak, made my heart pound and gave me horrible insomnia. I got 3 1/2 hours sleep last night. I was balling at 11 because I was so tired and couldn't sleep.

My poor husband. Thank goodness he is an amazing and patient man!

I can't even think straight to remember what I wanted to say because of being so tired and in so much pain.

Thanks again for all of the advice and well wishes. I will keep you posted on my progress with this as much as I can.
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Old 09-08-2016, 04:54 PM #3
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i just want to give you a and to say i hope this all gets figured out very soon. i'm sorry you're in so much pain. you're right about the dilaudid, good call on your part.

i agree with the suggestion about checking in with your OB/GYN dr. sometimes things aren't always MS related. and that dr may have a unbiased and different take on your problems.

i wish you well.
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