Okay, new niece born Saturday! The family is home and I got to hold her both on Saturday and at coffee at Grandma's (my Mom) this morning!

I am so relieved about the tests! Unfortunately it is still on my mind, because the blood tests can be negative even if you have the disease. So I will just keep an eye on things. But for right now her back pain is better and her and I are going to start some back strengthening yoga.

I'm trying to decide if this is a reaction to the meds or MS, I'm getting so weak, in the morning I almost can't get up from the toilet. I have to hold the counter with both hands and use every muscle in my body just to stand.

My neuro does have me taking 300mg of gabapenton twice in the evening to try and help with the pain.

I will keep you posted.

Well, things are still getting worse.

My husband brought me home a walker at lunchtime today.

I'm in so much pain and so tired I can't think straight, I know there's more I wanted to say.

Oh no! I'm so sorry things are getting worse for you. Is your neurologist able to bump up your MRI from Friday to maybe tomorrow? If not, maybe an ER visit is in order to get the MRI done faster and start you on something to help calm your body down. This must be so scary for both you and your family.

I will keep you in my prayers. Please update us on how you are doing.

I figure if I still feel this way in the morning I will call my neuro. But she works out of a different hospital than where my MRI will be, there is no neurologist there. So I don't think she can get it moved up, my PCP might be able to, but it's a 3 hour MRI, I don't know if they have the time for that.

My daughter's open house for school is tomorrow and my son's is Thursday, so I have to find some way to function!

Not much strength, so this will be short.

Just wanted to update...

My MRI was Friday, my neurologist wanted to wait until she gets the results to start steroids. I know she has them but she has not reviewed them yet.

The walker was not working for me, so my Mom got me forearm crutches, those are very helpful.

My left leg almost won't function and is tingling and hurting. I'm so weak walking is almost impossible.

I saw the ureologist today, she wants me to go for special bladder tests because I do have retention.

My PCP called today and said my MRI showed that I'm stable, but I will wait for the neurologist on that call.

Just want to mention; while I don't usually use a walker (use a cane); I do have a walker along side of my bed to help hold on to while getting out of bed in the morning. I also use the walker when I am getting up from the toilet. Hopefully this will be of helpful for you as well.


Gerry

Talked to neurologist office. They say there are abnormalities in the thoracic spine but they floor new.

But they're starting me on steroids, just waiting to hear when.