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Old 07-26-2007, 06:45 PM #1
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Oh Ada
I'm so sorry you have so much going on to have new symptoms to top it off. As AMN said MS is different for everyone.

I've had MS for 10 years. The first three were tough, lots of numbness, hands and feet, right side worse. I had to go on disability, then pretty steady until Jan '06. I seem to be on a slow decline. Right side is weaker and hands so painful, everything in my life is trying. But I keep on keepin' on. Have realized I'll just have to do most things differently now.

I moved to CO 2-1/2 yrs ago and from my MS friends it seems that half of them, at least, moved here from somewhere else.

I hope you find the answers you need. We are here for you.
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Old 07-26-2007, 11:06 PM #2
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Default Hi and thanks

for the help.

I have lived in Co. for 35 of my 55 years. I'm from Ky.

I have started having the leg and feet problems. If I go off of my Methadone then I can't stand the pain and can't walk. I am now dealing also with the tightness in the legs and feet.

I use a cane only when needed also. I work hard to keep going also. It's a constant struggle.

I was surprised to see two Coloradoians answer me. I'm about 150 miles from Denver.

I have a Neurologist in the Springs that has helped me. He was my neighbors Dr. and he had me to go see him. The man is very good.

Where I live it seems like 75% of us are implants from other areas. I was just wondering if the altitude makes a difference on MS.

Thanks again for the help.
Ada
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Old 07-27-2007, 10:05 AM #3
christine bauman christine bauman is offline
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Default colorado loving it

Hello and I also live in Colorado, last week at a seminar by Dr. Murray my nuero he asked the crowd how many moved to Colorado after diagnosis. It was interesting about 2/3. he mentioned most people move here due tot he climate. It is the most MS friendly. I love it here and have improved. But have gone on organics foods and eat healthily. No saturated fats or try to not have them. Good supplements from Whole Foods. he told me to take Reversal, vitamin b, fish oil, alpha lipoic acid, no soy products, grape seed extract, And I have. I work out a little, swim, ride a bike. But I can't walk with out assistance, a walker. I use a scooter for longer distance. I have had three doses of Tysabri and noticed improvement.

Hope this helps, hugs Christine
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Old 07-27-2007, 01:29 PM #4
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Welcome dreambeliever128, Nice of you to drop in from your RSD forum home. I'm sorry for all your multi DX. What a shame.

I hope you like it here and visit often.
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Old 07-28-2007, 10:45 AM #5
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Default Hi and thanks

for the help.

My right side has been my worst and since I have TOS and RSD also it is so hard to figure out what is causing what.

My Dr. gave me paperwork to get tested for the lyme disease so we can deal with it.

I also get these pin prickling feelings all through my body. I can be laying in bed at night and feel them and then the pain starts in.

I've quit walking this month due to more problems with my feet and legs. I have been taking walks for over 8 years but this month has been a very bad month for me.

As I said I have one friend who is in a wheelchair from MS. She does good at times and then spends a lot of times in the hospital. She is only in her early 40's. I am hoping not to get there.

Ada
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