1.) don't panic

2.) I agree with kitty and starz, you need some more testing, and to me, even with a complete lack of any medical training, an mri seems in order. While it may not provide a cause it may help to eliminate some.

3.) My diagnosis took almost 3 years, I saw a number of different doctors, pcps, an infectious disease specialist and like 4 different neurologists, all except the last neurologist, a ms specialist, seemed content to apply labels to my condition rather than do the proper testing to find the correct label.

4,) If you have mris done? get the mri reports, you may want to see what is actually in them, and not just joe neuros interpretation of them. My first mri was of my brain, and it showed abnormalities. My first joe neuro took them to be small strokes and made no mention of the fact that it mentioned in the report that " given the location a demyelinating disease isn't entirely excluded "
5.) mri #2 was of my cervical spine, and it clearly showed lesions, and they were noted in the mri report. Again, with no medical training it seemed to me that given the results of mris 1&2 a mri of my thoracic spine seemed to be warranted, joe neuros 1 - 2 - 3 had different views, they were content with labels that didn't seem to fit.

6.) Don't be content with a label unless it fits, and certainly don't be content with joe neuro telling you no further testing is needed or necessary if you are progressing.

JMHO

I agree with Sleeper. The only thing I'll add is this. Make sure the MRI you get is with and without contrast. There's not much point in getting one if you don't get the two different versions. You might have to be insistent about it but I wouldn't waste my time or money unless it was with contrast.