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Old 03-04-2020, 05:57 PM #4
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ewizabeth ewizabeth is offline
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Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
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I was getting worse before I started Ocrevus. My neuro knew about the pain and weakness but the pain had been attributed to back problems. I made an appointment with a neurosurgeon about a month ago and he said there is nothing seriously wrong other than normal aging. He said there is no surgical fix for my pain.

I did have a minor herniated disc at L-5 but that has improved with chiropractor treatment for five months. The medicines I take to control my pain probably make the weakness progress too. I take baclofen and gabapentin 3x a day and tramadol in the evening on bad days.

I'm thinking about getting authorized for medical cannabis to see if that will work better for the pain.

I belong to a Facebook group for Ocrevus patients and there are many taking it. There are quite a few in their 60s and 70s too.

The neurosurgeon I saw suggested a MRI of my thoracic spine. He's not a neurologist though so I don't put a lot of stock in that. I might suggest it to the neuro next month though. If I do have spinal lesions there is nothing more to be done anyway. I can't tolerate high dose steroids, and I'm already taking Ocrevus. There might be a better treatment for those with spinal lesions though so I suppose it can't hurt.
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