Is the main issue in your arms - the heaviness, surging sensations?

Any repetitive motion work, forward head/shoulders posture, desk postures work, previous whiplash / neck/shoulder injury in the past?

If so look at our RSI & Thoracic Outlet Syndrome (TOS) forum..
I had weird surging/buzzing sensation in my arms with severe RSI and also overlapped with some TOS symptoms..

OP: I don't have the MS challenge but walked with my sister thru her disease. She had many other issues along the way, she was 21 or so when first signs appeared and one MD said, "maybe MS"...they didn't know, she went on to do her hectic stressful life and then the MS really hit her...she took so many drugs, unbelievable and she finally found how valuable D3 is and there are many other supplements that could help and to just STOP with drugs, is not in my mind. There are many links about "alternative therapies" and MS and I know of many who take LDN....

But as you said, you are not sure yet....right?

I truly believe had my sister done more supplements and less of the drugs, she "might" be alive..... but so many put faith and trusts in doctors and the drugs. My thinking on it all.

Sphingolin is one supplement I've read that people with MS take.

Thanks for your replies folks.

Main symptoms at the moment are

• Pain in arms, almost all the time
• Altered sensation in right side arm and leg; arm feels like it's tight, and leg feels like im walking with a slight limp, but I'm not. No obvious weakness.
• Buzzing in right foot - on and off
• Slight tinnitus in ears
• Muscle twitching everywhere
• Increased eye floaters
• Depression
• On a few mornings, woke up with dead arms, which felt like a loss of circulation

The surging feeling in my arms only happened for about a few hours over the space of 2 days way back in August last year. I went to bed and woke up with nausea. Things then developed where I'd have symptoms come and go. Then in early December, it all went away. But came back in Feb again this year.

7 years ago I went through a sort of similar period over 3 months, with mainly a constant headache, slight dizziness, brain fog, dead arms when awakening in the morning and general malaise.
Kind of strange how it all happened a month after I had a throat infection, which I assume was glandular fever/mono. Also had periods in between, possibly once every 2-3 years where I would get dizzy.

I don't know what to do, this pandemic situation has put a hold on all investigations. So at the moment I am on amitriptyline, folic acid, multi vitamin and magnesium.

Hi Blueboat,

Those don't sound like MS problems to me unless some of the changes in sensation might be. MS symptoms tend to be more severe and to involve more than one part of the body (eye problems plus bladder problems, for instance).

Muscle twitching can be a side effect of the amitryptiline you're taking. Could you reduce the dose of it or cut it out entirely to see if that cuts down on some of your symptoms? Check with your doctor of course but note that muscle twitching is one of the side effects you should contact your doctor immediately about--according to this from Drugs.com:


Amitriptyline Side Effects: Common, Severe, Long Term - Drugs.com

Hi agate.

I can't remember if the muscle twitching before or after I started taking amitriptyline. But I've been taking that for the pain in my arms. I know I had it last time I went through a phase 7 years ago.

It feels severe. I've not been the same since it all started in August.

Not sure what you mean by "a phase 7." I realize there's a movie with that title but unfortunately I haven't seen it.

Sorry I meant I went through a phase, about 7 years ago