Hi Cindyjo and welcome to NeuroTalk

I am sorry about the symptoms you are experiencing.

I went back and read your other Thread in the introduction section. Body wide symptoms such as you have explained isn't quite how this disease works. Many things can sound like MS but are not MS.

I see that you use Baclofen and Lyrica. A side effect of Baclofen is sleepiness and weakness, so if you have seen an increase of those symptoms since starting Baclofen it might be the cause. Lyrica can also cause drowsiness.

It's always a good idea to be aware of medication side effects as they can make it seem as if something is wrong or getting worse. Everyone reacts differently to medications.

Polyneuropathy and Fibromyalgia could certainly be causing your symptoms.

I wish you all the best and if you have any questions please ask

Hello Cindy,

maybe a spinal tap could help you, and also to discard not only MS, but much more diseases.

The only thing I can think of MS is that your lesions were so small that the MRI is not detecting them, or they appear/disappear so quickly.

Thank you all for your sincere reply’s. I was frustrated after my appointment w the neurologist and wanted feedback back directly from people who are living w MS. I just wish I had a more definitive diagnosis.

Stay safe out there!!

I'm sorry you are having such a rough time. It's so frustrating when we feel the doctors aren't listening and don't have that validation. I think we all have been there to varying degrees.

Have you discussed any of this with your primary care doctor? They may be able to help get the ball rolling quicker and in the right and/or different direction. Unfortunately, there are a number of diseases that mimic MS. Your PCP may be able to come at it from a different angle, maybe testing for other autoimmune diseases and even going to a rheumatologist.

It's really hard to be struggling and have no definite answers to anything. Hang in there and let us know how you are doing.