It only last for 20 to 60 seconds for me. I'm not DXed, but listed as possible/probable, and that is probably where I'll stay..............no "O" bands.

Yep doc's think we make things up don't they? I'd love to wire them up and let them feel for themselves. Ahhh I can dream.

I'm on LDN from my PCP, which has made a big difference, my lesions were getting worse before the LDN, haven't changed since, and no major attacks either since I started it 20 months ago.

I've learned to live with allot of symptoms, you get used to them, they just slowly pile up and become part of your life. It kind of freaked me out a few years ago when they really hit all of a sudden and all at once. Oh they were there mildly here and there for years, but they came crashing down hard for about 5 1/2 months and never left after, just eased.
Pat