Thanks Cricket and Matt.No Matt ihaven't had a thoracic MRI in the 8 years.I get lots of pain and tingling there.I also have bad problems with temp control,humidity and heat worsen spasticity as does the cold.

cricket that's my argument they should have picked up worsening spasticity and looked at why.Ovbiously it's not coming from cerebellum so it must be from spine.

However my initial examination with MS Specialist showed nystagmus and brisk jaw jerk which goes with the brain stem.I was told they thought I had a lesion in a critical area.

I have wondered about Devics/Neuromyelitis Optica as first neuro said I had 2 attacks of ON and my vision in left eye is hopeless due to optic atrophy.Also my attacks were always my legs and bladder but I would be really ill in bed.Family would call GP out and he would offer respite care

I've had to sort out Daughters health problems this year,she's seeing a Neuro.My Mother has another neuro condition and also a wheelchair user and has been seriously ill.So now maybe I'll start looking for answers again.

Jacqui.