Hi,

I'm geting my first Tysabri infusion tomorrow. I'm not terribly disabled, just numb fingers and general forgetfulness, but the fatigue is really hampering my life. Is anyone else out there currently on Tysabri? I'd love to share experiences.

I'll try to post again tomorrow night or the next day to let you all know how it went.

Katty

Hi, Katty! Welcome to our scary little bunch of MSfits!

There are some who are currentlyon Ty, I'm working on it with my stubborn ins. co.

I'm glad you found us and do let us know how it went for you.

Hi Katty, nice to meet you. I hope some people chime in on Tysabri for you.

Please do let us know how you are doing on it. I wish you the best of luck, that TY will work for you.

Hi Katty and welcome!!

I am on Tysabri. I will have my 5th infusion in September. So far I don't have anything dramatic to report.

I feel as if my stiffness has lessened. My eyesight has improved because my eye muscles seem to have stabilized. My fatigue has lessened. I FEEL better than I did. I do more than I could before Tysabri.


So far so good, no adverse reactions. I'd say Tysabri is working for me.

I am careful in what I post because I don't want to give promise to people who don't get the same results as I do. Before I post that something is better I make sure it isn't related to anything else I have done.

I hope Tysabri works as well for you!!

Hi Katty and Welcome! Good luck on your TY infusion. I have a friend who is doing very well on it and is just going in for #12 today.

Hi Katty
Welcome, welcome. Looking forward to hear how Ty may be working for you. Jump in anywhere, and hope you enjoy the group as much as I do.

I have not posted in months. Just read Katty's post.

Update: Infusion #11 coming 9-5. Things are improved from where I was before Ty. Diagnosed in '84 with chronic progressive. Balance has never gotten any better. Still go to the gym. Strength is good as well as the treadmill. Never improved after my 1st infusion, but did not get worse. Had an awesome effect after #1. Not a typical response to TY.

My doc is doing a blood draw to test for antibody buildup after infusion #12. Has anybody had this done?

Pete

Hiya, Pete! You're kind of a newbie but really an oldbie. Cool, I'm glad you're back.

I'm not on Ty but I figured I'd at least say 'hi' and let you know that it's good to see a new face around here. We have a handful of fun folks and we just chat away. Please do join us any time!

Welcome, Pete. Thanks for reporting in and so Happy to hear you are doing well on Tysabri. Not getting any worse is a good thing with MS, and if TY is doing that for you..WoooooooHooooooo!!

Nice to have you back.

Pete, why is the doctor checking you for antibodies? Are you reacting to the medicine?

Ewizabeth, thanks for sharing. No new symptoms is indeed, a huge blessing.

Here's how I'm doing as of day three. I'm mentally more clear--I'm a writer trying to get published. Mucking through all the shadowy, sleepy MS stuff every day is a huge problem. I'm still tired, but it's not the same in your bones, bored, unenthusiastic tired--it's more of a plod along, get things done kind of tired.

My left hand is still numb, although the last two fingers went numb only last month, so I think I can still hope for some recovery there. My eye has mostly stopped twitching, although that symptom comes and goes and it's unclear weather that is the Ty or just the natural up and down of the disease. Finally, my left leg gets a bit draggy at times, at the moment it is strong and I am walking normally, but again, that comes and goes for me.

My most dibilitating symptom so far in the course of my disease, is the MS fatigue and lack of clarity. I don't get much sympathy, as nobody can see these symptoms so even if I explain in great detail, it is impossible for people to understand what a grind it is to just get up in the morning. It is these symptoms I'd most like to wave boodbye to from the rearview mirror.

Has anybody experienced depression on this med? I'm kind of blue today.

Katty