Hey there everyone!

After dealing with MS for 17 years, thought I "knew it all".....then WHAM, something new comes along. I don't know if anyone here has dealt with these two issues, but thought I'd try since you guys are the greatest when it comes to trying to help a fellow MSer!!!!

Today I was supposed to start my two day, bi-monthly steroid pulse, but the visiting nurse wasn't able to get anything started with my problem veins. Have three bandages on at present! They always have to use the butterfly (baby) needles, but when she tried to thread it, get the plastic part in, it would close up. There's a call in to my neuro, but he may not call back for awhile, but she had mentioned putting in a "pic-line" which doesn't sound too good to me. Isn't that where it stays in the chest or somewhere to make IV's easier to give? Being it's just for steroids, I'm wondering if it's worthwhile since sometimes the steroids don't seem to help much anyway at this point???? I was hoping they would "loosen" up my legs a little since they're so stiff all the time. What do you think?

The next question is for those with advanced MS who don't have anyone around to help.....or who may have a suggestion! Being my legs are so stiff, it's a BIG problem getting into bed. Sometimes I can sit on the edge, lie back as fast as possible to swing my right leg up onto the bed. With my "foot grabber" I lasso my left foot and hoist it up with the knee bent, try to hold it while I "lasso" my right again to bend it up enough to get under the blankets. But.....sometimes that doesn't work because my legs are sooooo stiff and heavy due to fluid build-up. I can't pull them up no matter how hard I try and the more I try, the stiffer they get. Of course I get upset too and that doesn't help. Have to wait until they relax which can take as long as 45 minutes. Exhausting!!

If anyone has any suggestions, I'm "all ears"!! Did I mention I HATE THIS DISEASE?!?! Grrrrrrrr.......

Think I'm feeling a tiny bit better about the loss of Susan, my little dog. I see her everywhere but I continue talking to her. Can't keep her ashes in view yet, maybe in time. Suppose the stress doesn't help the stiff leg thing any.

Hope you're having an okay day. Brrrr.....frost this morning here! Take care.........

Hi Judy
I can't help with your issues, sorry. But, I want to offer my support and wish you some relief, sooner rather then later.

Regarding your pup loss. Time really is the only comfort. I remember not being able to look and Brandi's ash box. Eventually I could put a hand on the top and felt a bit better. She had cancer and black leisons on her face, it really wasn't good for her in the end. The last night before she was to be put down, I had put a blanket around her and held her up so she could breathe better. She is definitely in a better place.

Hugs to you.

The nurses always have trouble getting the IV started on me too. I've had so much IV steroids over the past 5 years that my veins are shot. Usually they have to get a IV therapist to start the IV and they put in a heplock port for the 2 or 3 days. That might be what the nurse was talking about, that way they don't have to start a new line each day.

Last time I had an MRI, the tech had trouble starting the IV for the GAD! It took 3 sticks! So I know exactly how you feel! I am in a clinical trial so I have an MRI every month with GAD. Not fun...and then they have to draw tons of blood from me (Taffy don't look! )

One thing I might suggest is making sure you drink plenty of fluids the day before you have the IV done and warm up your arm. That seems to help. Warm veins pop out a little better and the vampires don't have to go deep sea (see) diving looking for them! LOL!

I think they have a 'mini pic' line. It's put in the arm by an RN and it can last for several weeks. It is accessed with a 'Hep lock' eachtime used and then flushed so it is open for the next time. It's been many years since my RN days so my knowledge may be a little rusty.

A "rusty" pic line? Ick....

Just kidding....but yeah, that's it!!!

Boy, Judy, I know what you mean about the bed thing. I am still able to use a bedstep that raises me up as I get in. By being just that little bit higher in landing, I'm able to raise my dead leg just in time to land.

The best solution I have come up with for myself will be a vertical pully-type system from above, where I'll be able to pull down on a cord to raise my legs up. I don't need it just yet, but the time is near and I'm getting my ducks in a row.

I have the leg-lifters too, but just getting my foot into the loop seems like an olympic event.

When I was travelling, I kind of dove into the hotel beds, but if I smash theirs, I don't care. Mine is a different story!