HI Bonnie...Welcome.

Your Doc may have been having a bad day or maybe she talked to some other Docs who are still wary of Tysabri. Do you still have RR..exacerbations and remissions? Tysabri has really only been proven to help in some RR cases and not SP or PP.

Talk to your Doc more about this and tell her that it's your MS and Your risk to take. Make sure you do know all the risks and are willing to take them.

I've heard mxed results from People on Tysabri....from good to bad or no help at all, so it's not a sure thing.

Good Luck.

Hi Bonnie and Welcome! I can't advise you regarding Tsyabri but wanted to say hello. I've been on LDN for around three years and seem to be pretty stable. Hope you stick around and good luck with whatever you decide!!

Hello Bonnie,
I'm sorry you had such a bad visit with your physician. I was in the Antegren (Tysabri) study trials, and did very well. The only reason I am not back on it now is because we are trying to get pregnant.

I was in a double-blinded study, but after two months realised that I had to have been on the real thing because the changes in my symptoms were so obvious. If there is an MS Centre near you, I would suggest seeing someone who is more familair with Tysabri if you are sure that's the route you would like to take.

I know that if we are not able to conceive in another year or so, I am going to start taking Tysabri. It seemed to work very well for me, and after the warnings came out, and the study was over, it was not enough to scare me from taking it again. Good luck to you. I hope you start to feel better soon.

All the best,
Chris

Flaunt, I'd go back and ask her why she thinks it would be dangerous for you, and come prepared with a friend, paper & pen, or a tape recorder. I'd ask for a detailed explanation.

My MS Specialist and doctor did not recommend the CRABs (or steroids) for me, in particular, because of where my damage was (mostly the spine). He said the CRABs are not effective for these lesions. Since I only had a few in the brain (after 12+ yrs), he did not think this was a good approach.

I went home and did my own research, and in the end I agreed with him. That is what I suggest you do; find out "why" this is your neuro's recommendation, then research yourself. If you don't agree, then seek another opinion.

Cherie