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11-21-2007, 12:15 PM
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Member
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Hi Gang,
I don't know if any of you remember me but I used to be on this forum for about five years and left about a year and a half ago because my diagnosis was changed from SPMS to Heredity Spastic Paraplegia (HSP).  HSP is a rare deteriorating motor neuron disease and only about 20K diagnosed patients in the US. No treatment, no cure. With MS it is "if" this or that may happen. With HSP it is "when" will this or that happen. All they can do is make me comfortable and treat some of the symptoms. I have since learned that we have many of the same mobility, weakness, cognitive, and psychological problems incommom. So I thought I would come back and ask if it is OK for me to rejoin your forum. I really miss my old friends and the love and support.  Let me know if this is OK with you all. HSPCraig Craig Mattice www.aboutcraigmattice.com |
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11-21-2007, 01:14 PM
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Wise Elder
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Hey, Craig! How ya' been? How's the website doing???? Whatcha been up to besides counting symptoms???
You going back over to MSW too? Good to see you again. 
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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11-21-2007, 01:32 PM
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In Remembrance
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You are as welcome as the flowers in May..
 So nice to hear from you again. Your disease sounds just as crappy or crappier than MS, so rant away, if you wish or just enjoy the company. 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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11-21-2007, 01:34 PM
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Member
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Hi Cindy,
Great to see you again! My wonderful business on the web ended up being a major third party leasing fraud. I think I've gotten everything taken care of from a legal standpoint and won't ever hear from them again. They tried to put me into collections for $3K more than I would have owed if the lease was paid out. Luckily, I only lost alot of time and only about $600. Now I'm just dealing with this disease on a daily basis, not unlike the rest of the members hear. Wanted to get back and active on the forum. Yes, I'm reregistering on all of my old MS forum such as MSF and MSW. Thanks for the welcome and I hope you have a wonderful Thanksgiving. Your friend, Craig |
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11-21-2007, 05:12 PM
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Elder
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Hi Craig!
Nice to see you back!  Sorry the website business took a hit. Have a Happy Thanksgiving.
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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11-21-2007, 05:29 PM
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Elder
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Welcome back Craig! Happy Thanksgiving!
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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11-21-2007, 06:52 PM
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Magnate
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Hey Craig. Welcome back!
__________________
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