I'll vouch for Cheryl! If it wasn't for her and many other people who entered the trials, and fought to get Tysabri back, I'd be a whole hell of a lot worse off than I am right now! The Touch program is good protection if the infusion staff follows it, and so far, most seem to be being very careful.

Cheryl, The one vial one patient thing seems to have changed. I know in my case there is always an extra vial stored for me. I have heard from a neuro on another board that he orders by the half case and case now instead of by the patient. They seem to be tracking pt. and lot # or something else, because I get the vial and the box every infusion and the bar codes are the same by lot #.

Glad to hear that you are restarting Tysabri! I have had nothing but good results since I started. I hope you have the same experience!

Well, my neuro wasnt there yesterday. He has thursdays off. That's why they didnt try to get me in yesterday. I havent seen any of the other neuros at that office (talked to one or two over the phone) I dont really mind having to go back. It is annoying that this has happened to me twice there.

At least the yarn stores are nearby. (I stopped at one on the way home and consoled myself with 6 skeins of yarn for a shawl)

I picked my parents up this afternoon at the hospital. Drove my dad home so he could sleep off the legal buzz he got from the pain meds they give for the cardiac cath's. Then all three of us went up to a local italian restaurant and had lasagna. He is so much more calmer now. He thought he was as sick as his brother was when he had a similar problem 15yrs ago (my uncle died 12yrs ago while waiting for a heart transplant...altho, it was his pancreas that killed him....his heart was still beating as strong as it could when his pancreas killed him)

Now that my dad has been fed, watered and got to sleep off the drugs, he looks like he feels better than he has in a few weeks. His heart is healthier than they thought it was, and he had no blockages in or around his heart.

My aunt (a cardiac care nurse practitioner amd the widow of my dad's brother) told my dad it was probably from the hypertension (high blood pressure) that my dad has had since he was 15yrs old. She was right. My dad will be going to see his regular doctor on monday to figure out what the treatments for this will be. (probably beta blockers and stuff like that) He's probably also going to have to stay on his asthma medicines from now on.

At least he sounds and looks better than he has in a long while. I should have known something was wrong when he was coming home so tired that he was nearly falling asleep in his car at the red lights every night. He was having more fatigue than I've ever had.

Hopefully all the meds they're probably going to be giving him will help.

Erin
Enjoy your yarn shopping, I'm a bit jealous. I'd love to get more yarn in the house.

I'm so glad to hear your Dad's heart is better. Such good news. Give him my best.

Hi Chris,

You have every right to be p***ed off about this and I think a call to the clinic administrator is in line here. You were grossly inconvenienced and for no apparent good reason. Their personnal did NOT do their job at all here.

I'm sorry you had this happen to you and would think that they could schedule you back on an expidited method rather than waiting weeks for another appointment. I know my hospital does MRIs from 6am to 10pm at night so getting in is not a problem at all. Check this out at your clinic.

Thanks you lot for your good wishes with the Tysabri and for letting me know that I am not the only one who has had such a SNAFU with the medical system and the American insurance system. Although I have been here a number of years, it seems that the problems with managed care seem to be magnified. Over in GB, we may have to wait for things, as we don't have the vast amount of technological equipment that you do here, but patients don't have to battle for their health care. It's so frustrating-from both a patient and a provider standpoint!