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Old 01-23-2008, 11:41 AM #21
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Officially, a separate attack would normally be defined as having 30 days of "remission" between symptoms. That doesn't mean we wouldn't have any symptoms during that 30 day period, just that nothing really "new" is happening. I think Cheryl might be right that this is all one attack.

I've had MS at least 17 yrs. I have had many back-to-back (with 30+ days remission between) attacks, and these seem to come in sudden spurts during my life. Sometimes it will be years without problems; other times I will just recover and have another 3 - 4 in six or twelve period.

The longest two attacks I had were 18 months, all up. The first 6 weeks the attacks escalated, the next 6 weeks many symptoms recovered, then I continued to recover (with some fluctuating symptoms) over the next 15 months.

It sounds like the the inflammation is not dying down (giving you a break), which leads me to believe that whatever drug you are on is not working well for you. That, or perhaps there is something, like an underlying infection, which is sending your immunities out of whack.

JMHO

Cherie
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Old 01-24-2008, 03:04 PM #22
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Sounds like a lot of stuff to deal with!

Kebsa, your posture problems may be related to weakness in the back muscles from the MS. Last month my back muscles were weak-feeling, and if I sat up straight, I'd end up tilting over without noticing it.

Tysabri is recommended for those people who don't do well on Beta or Copaxone... sounds like it might be the drug for you.

And as to why you're having serial flares, it's a puzzler! They say we have more flares in the first three years after diagnosis... but that's just what they say. I have a hard time figuring out whether I'm in a flare or just experiencing more symptoms, myself. Since I have new symptoms every month... well, it's hard to tell.

Everybody is always on about their latest lifestyle choice, and how they feel so much better - but without actual scientific evidence, how do we know that this diet supplement or that foodstuff is helping your symptoms? All we can do is look at our lifestyle and remove the stressors from it, and try to keep our bodies as healthy as possible. That way it can recover quicker from the damage it's doing to itself.
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