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Old 01-21-2008, 04:25 PM #11
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Quote:
Originally Posted by SallyC View Post
I'm glad your MS is not giving you fits. Sorry about the achilles tendon..OUCH!

Let me know when you get up to ramming speed and I'll try whatever you did..LOL.

(((((Greta)))))
Are you gearing up for your guests the end of the month?

(ramming speed! lol)

Be careful Gretata! Don't want you hurting yourself too much!
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Old 01-21-2008, 04:27 PM #12
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Originally Posted by Av8rgirl View Post
Hey Taffy...how much Topamax are you taking? Maybe you need to up the dose?

400 mg a day is my dose. I tried 375 and immediately got a headache! Back up to 400! 450 was too much...didn't like the side effects!

Yeah, maybe you SHOULD call the doc!!!

Wow! I am a Baby Dopeamax! I am only on 200 mg!

If I was someone else, I would be saying, "Tell the Dr." I never listen to that Taffy!
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Old 01-21-2008, 04:42 PM #13
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Hi Beth. Do you take any extra Magnesium? Some people swear that it helps with the spasticity. Let me know it that helps you.
Wow Sally I never thought about Magnesium. I will try it. I have suffered sometimes severely with spasticity for a year or so now. I'll let you know if it works. Thank you
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Old 01-21-2008, 04:50 PM #14
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Are you gearing up for your guests the end of the month?

(ramming speed! lol)

Be careful Gretata! Don't want you hurting yourself too much!
I'm not worried. She's strong like bull. Don't go spilling the beans and telling her that I expect to be carried everywhere while she visits!
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Old 01-21-2008, 04:56 PM #15
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SalllyC - WOW, 4 birthdays in a month! And right after Christmas too. Bless your heart, you must be exhausted. Thanks for the magnesium tip for spasticity. I might give it a try as I really am trying to keep the drugs I take to a bare minimum.

Taffy - Thank you for passing the "whine" bottle. *taking swig, getting nerve up to complain. lol* What will you try next? You really did not have a good time with the DMD's did you. Have you tried increasing your Omega's? It really does help.

Barb - My little friend. I am sorry you are not doing any better. Have you called your neuro?

Bannet (Beth) - Boo on the spasticity. I too don't like it much. It is now a constant in my life. I do do a lot of stretching exercises and have added resistance bands to my morning routine. So far it has been working for me.

Greta - OUCH!!! That sounds like it hurts. That would be the only time I wish my foot and leg to be numb. (Except when I use the epilator. Tried that once and it worked well on my numb leg. LOL).

OK - I've had a few swigs of Taffy's "whine" so . . . .My eye is killing me and has been for a few days. I really don't know if it is sinus related or MS related. It almost feels as though it is throbbing deep in my eye.

Ok, next?
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Old 01-21-2008, 05:01 PM #16
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I'm not worried. She's strong like bull. Don't go spilling the beans and telling her that I expect to be carried everywhere while she visits!
Mums the word. Besides I've got too much on my plate with all this sinus garbage I am dealing with. Woke up this morning with a stupid sore throat again this morning! I can't win! I hope the ENT referral comes thru fast.
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Old 01-21-2008, 05:33 PM #17
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Guess I am next. Today wasn't to bad a day. Just still having more of
the problems with my eyes. Was off balance walking. The other problem was
fibro- had to take pain pills today for that.

The only other meds. I take are for the anxiety and stomach. The rest
are herbal pills. I have been afraid to try the meds for ms. Saw some of the
side effects and I said I will try and stay away from them as long as I can.

I have to take my dog Sage tomorrow for her pre-op testing. Thursday
she is going to be fixed. I am nervous about it. Surgery of any kind is scary.
I hope everything is going to go alright.

That's it for now. Can't look at the screen to long without my vision
acting up.

HELLO TO ALL THE NEWBIES

Joyce ( also known as Jappy )
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Old 01-21-2008, 05:37 PM #18
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Quote:
Originally Posted by Joyce View Post
Guess I am next. Today wasn't to bad a day. Just still having more of
the problems with my eyes. Was off balance walking. The other problem was
fibro- had to take pain pills today for that.

The only other meds. I take are for the anxiety and stomach. The rest
are herbal pills. I have been afraid to try the meds for ms. Saw some of the
side effects and I said I will try and stay away from them as long as I can.

I have to take my dog Sage tomorrow for her pre-op testing. Thursday
she is going to be fixed. I am nervous about it. Surgery of any kind is scary.
I hope everything is going to go alright.

That's it for now. Can't look at the screen to long without my vision
acting up.

HELLO TO ALL THE NEWBIES

Joyce ( also known as Jappy )
Hey Jappy! Getting Sage fixed is a piece of cake! It will go just fine!

Sorry your eyes are acting up...go rest...Yappy is baking some more cookies. I can smell them!

I get dibs on the red eyed ones this time...she got them last time! LOL!
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“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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Old 01-21-2008, 06:02 PM #19
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Frown

I guess I'll go next. I'm RRMS and in a my worst relapse ever. Boo hoo, poor me LOL!

I am feeling extraordinarily lousy today. The right leg and right arm are killing me. My dh had to drive 40 minutes to pick up my scrip for percocet because the neuro can't call in refill because of the drugs classification.

All of this can just be really exhausting. I'm getting over a cold too which caused pseudo relapse on top of my real relapse LOL. I was getting better after the 'roids then wham, I got hit with a cold. Ah but life goes on. Thanks for listening all!

I hope everyone else has a better day tomorrow!

Btw, I'm between dmd's right now waiting to start Tysabri soon.
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Old 01-21-2008, 06:29 PM #20
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Hiya Sal!

Hi everyone, good to see all the familiar faces!

Is it ok to say that I woke up this afternoon and I feel fine?

It's always nice lately. I wake up and just for a moment I forget I have MS. No stiffness, no dizziness, no nothing. I hope it continues forever!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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