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Old 01-23-2008, 07:36 AM #41
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MS wise, I'm doing ok. Both feet freakin' hurt, but I'm not blaming that on MS, yet. Left leg's numb knee down, right leg's numb mid shin down. I walk a little funny, but not so that people really notice.

I'm between exacerbations. I'm like clockwork - every spring and fall.

No DMD's. I drew such a high number in the beta lottery in 1993 I just gave up on it. I did take copaxone for 3 weeks in 2003 after I got scared by a dramatic increase in lesions, but decided shots weren't for me.

I've had MS 20 years this month. Actually, what's the date? 23rd? It might be exactly 20 years - it was January 20 something when I woke up blind in my right eye (optic neuritis).

I really, really, don't have time to be bothered by MS. Space shuttle launch is Feb 7th and I got alot to do for it...

Tom
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Old 01-23-2008, 08:41 AM #42
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Good Morning Sally and Everyone.

My body is doing a little better today. I was told to rest and see how things go.

It seems that it was a little flare-up. I guess with all the excitement and
stress of the holidays, combined with the stress of January with all its memories it finally hit the body. Also this cold weather.

Sally, FG Sage is going tomorrow for her surgery. It is so funny I have had other females fixed in the past but, this time I am really nervous about it.
Maybe because I got her to help replace the loneliness of missing my DH I am
afraid that something else is going to happen.

I know you probably are going to say that I am crazy, but I can't help
it. It is a mother taking her child to have surgery.

Well I going to go and see what I can accomplish today.

Jappy
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Old 01-23-2008, 08:47 AM #43
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Quote:
Originally Posted by freeinhou View Post
I really, really, don't have time to be bothered by MS. Space shuttle launch is Feb 7th and I got alot to do for it...

Tom
Great attitude, Tom. I am the same way except I don't have a shuttle to launch. I do have a family to take care of as well as many other things that need to be done. I hate when the MS slows me down so I find ways to just deal and ignore.

However, sometimes I deal or ignore too long. Like now. Have a neuro's appt today to see if I'm in a flare or not.

Next . . . . (yes, I'm trying to ignore the symptoms right now and passing the "whine" bottle.)
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Old 01-23-2008, 08:53 AM #44
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Quote:
Originally Posted by Joyce View Post
Good Morning Sally and Everyone.

My body is doing a little better today. I was told to rest and see how things go.

It seems that it was a little flare-up. I guess with all the excitement and
stress of the holidays, combined with the stress of January with all its memories it finally hit the body. Also this cold weather.

Sally, FG Sage is going tomorrow for her surgery. It is so funny I have had other females fixed in the past but, this time I am really nervous about it.
Maybe because I got her to help replace the loneliness of missing my DH I am
afraid that something else is going to happen.

I know you probably are going to say that I am crazy, but I can't help
it. It is a mother taking her child to have surgery.

Well I going to go and see what I can accomplish today.

Jappy
No you are not crazy. It's a perfectly normal feeling especially when you are grieving. I think that makes it worse.

From what you have written, apparently you lost your DH. I am so sorry to hear that. *saying a quick prayer for you right now*
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Old 01-23-2008, 08:53 AM #45
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Lately is the best I've felt since the surgery/dx last year. My thinking is as close to what it was as it's been. I think that makes sense. The spasms have stopped and I haven't had kalidescope eyes in almost a month. Me thinks my MS likes the colder weather.
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Keith - dx'd 2/07
rebif 3/07 - 12/07
relapse 2/08
copaxone 3/08 - 11/08
relapse 5/08
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"Where's my Uranium PU36 Explosive Space Immune System Modulator?"

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Old 01-23-2008, 08:54 AM #46
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Quote:
Originally Posted by freeinhou View Post
MS wise, I'm doing ok. Both feet freakin' hurt, but I'm not blaming that on MS, yet. Left leg's numb knee down, right leg's numb mid shin down. I walk a little funny, but not so that people really notice.

I'm between exacerbations. I'm like clockwork - every spring and fall.

No DMD's. I drew such a high number in the beta lottery in 1993 I just gave up on it. I did take copaxone for 3 weeks in 2003 after I got scared by a dramatic increase in lesions, but decided shots weren't for me.

I've had MS 20 years this month. Actually, what's the date? 23rd? It might be exactly 20 years - it was January 20 something when I woke up blind in my right eye (optic neuritis).

I really, really, don't have time to be bothered by MS. Space shuttle launch is Feb 7th and I got alot to do for it...

Tom
Hey Tom!

I hope you feel better soon cause I for one am looking forward to that shuttle going up!
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Old 01-23-2008, 08:57 AM #47
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Quote:
Originally Posted by freeinhou View Post
I really, really, don't have time to be bothered by MS. Space shuttle launch is Feb 7th and I got alot to do for it...

Tom
Do me a favor and see that it lands at White Sand Missle Range this time! I remember the last time and it was the best thing that ever happend in southern New Mexico! I'll ask the man upstairs to help out with the weather too.

Good luck with the launch!
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relapse 2/08
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relapse 5/08
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Minocycline 6/09
Not a damn thing 7/09
"Where's my Uranium PU36 Explosive Space Immune System Modulator?"

.
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Old 01-23-2008, 09:01 AM #48
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The right side of my body has decided to go numb this morning. It's been threatening to all week but it finally made good on it today.

I've dealt with this before. I'll get through it - it's just annoying and it slows me down.

Like Tom, I don't have time to be bothered with all of this!! I have a life to live! Things to do, people to see!

TK good luck with your Neuro appt. - I hope you're not in a flare but if you are just hang in there. This too shall pass.....
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Old 01-23-2008, 09:42 AM #49
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Quote:
Originally Posted by freeinhou View Post
I've had MS 20 years this month. Actually, what's the date? 23rd? It might be exactly 20 years - it was January 20 something when I woke up blind in my right eye (optic neuritis).

I really, really, don't have time to be bothered by MS. Space shuttle launch is Feb 7th and I got alot to do for it...
yeppers! my little farm keeps me busy, tending to over 100 animals, and overseeing construction of an accessible house.

almost 20 years here... same-o same-o, woke up blind in my right eye, around Valentine's Day, 1988.

didn't get my dx until a major flare in '93, and also drew a high lottery number on the Beta... finally started it at the end of '94... took it for two years, until I started looking like a pincushion...

a lady walked up behind me in line at the grocery store, and slipped a card into my hand, saying in an urgent whisper "You don't have to LIVE like that!"

stunned, I looked at the card, and it was a for a battered women's shelter!

got home, and used two mirrors to look at the backs of my upper arms... sure enough, the BRUISES looked like I'd been grabbed and abused.

I stopped wearing sleeveless shirts after that...

the last straw was my liver enzymes going TILT, and that was the end of Beta for me.

gotta go check on the latest hatching, see y'all later!
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Old 01-23-2008, 09:46 AM #50
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: Am I last? takes me a while to stagger up to the microphone!

Friends, Romans, and countrymen(wimmins too!) I am normal today, for me! Scary isn`t it?
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