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#1 | |||
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Senior Member
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Hi Barb!
I'll be starting Ty as soon as the Touch program people and my insurance company get their acts together. I hope you get some replies soon. It would be good to read some new perspectives. Glad to see you here btw!!
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Multiple Sclerosis-Dx May 2007 . |
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#2 | |||
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Grand Magnate
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Joelle, good Luck! It only took me 2 days to get approved by my insurance and the Tough program. I think that must be some kind of record.
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#3 | |||
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Member
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Hello Barb,
Welcome to Neurotalk. My, my there has been a dearth of newbies here today! ![]() I never had any problems whilst taking the Antegren (Tysabri). I was very tired after the first 3-4 infusions however. I usually went early in the mornings and came home and slept the rest of the day. After a few infusions I did notice a change in my symptoms for the better. I hope you do too. If you have any questions, please don't hesitate to ask. All the best, Chris
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"I didn't know he was dead; I thought he was British" Woody Allen . |
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"Thanks for this!" says: |
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#4 | |||
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Magnate
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Hi Barb!
![]() I'm here AND with everyone on Tysabri!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | Jodylee (01-25-2008) |
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#5 | ||
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Member
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My son has had two infusions so far #3 on 2/5 - so far no changes, no improvements but remain hopeful
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Son with MS |
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"Thanks for this!" says: | Jodylee (01-25-2008) |
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#6 | |||
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Junior Member
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I've been on Ty Since last June. I love it. I haven't had any improvements with my symptoms but I dont have any side effects like I did with the other treatments. And I'd take a once a month infusions over doing my own injections anyday!
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"Thanks for this!" says: | Jodylee (01-25-2008) |
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#7 | ||
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Junior Member
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15 infusions for me!
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#8 | |||
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Member
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Quote:
ditto... i am guessing mid to late Feb for me...
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Dx:2005 RRMS Nothing Beats Bloodshot Eyes And The Scream Of A Tube Amp At 3am. . |
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#9 | |||
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Senior Member
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I just spoke with the people at the Touch program today. Caremark, my specialty pharmacy, will be shipping the Ty to my infusion center next week! Luckily for me, my infusion center is in my neuros office! I should be hearing from them soon about how much my cost will be and when my first infusion will be. I am very optimistic about Ty. I'll start my Ty log right aftermy first infusion.
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Multiple Sclerosis-Dx May 2007 . |
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