Beth

Are you ok????

Just checking on you!!!

:D

Chrappy sorry to hear that you are not feeling well.

We have an epidemic here.

I am happy to say that today is one of my best days so far.

That's just the problem, feel better now and a couple hours or more
later and feel like you have been hit by a mack truck.

We have got to start feeling better Summer is coming, we all have to
go on some fabulous trip, have wonderful Bar-B-Q's enjoy the beaches or
Lakes anything with water.

Go fishing, hiking, crabing, claming or just bathed in the Sun

"WOW THIS IS THE BEST DREAM I HAVE HAD IN A LONG TIME"

Jappy

feel better everyone :grouphug:

I'm okay, tired, hurting and to lazy to pack for Iowa and we leave before sunrise. Spent the day at my sisters sign shop and made my ankle and back hurt more.

It got so hot here 81, and humid, I'd forgotten how much that sucks. And I wore jeans and a navy tshirt, cuz it was chilly and raining this morning. :eek: I've been in bed trying to get rid of the headache and numbness and it's not leaving. :(

I hope you are feeling better, Cheryl, and Sally, and Chris, and Taffy, and the next sickie in line, and so on and so on ...

Next is the shower, that should cool my core, hopefully. See you all on Monday.

:hug:

Have a safe trip and we look forward to hearing all about it when you get back! :hug:

Oh geez, Bappy, get your booty in bed and give yourself a break! You're supposed to come back from a wedding all pooped out, not show up that way! Have a great time!

All you sickies, fall in for daily reports.

*TWEEEEEEEEE*

cue scary music.....

"I'm Back!"

(the gang groans!)

Ah, knock it off. You know you missed me. You did miss me right? The gang responds with ....:Noooo: Oh, I feel the love!:picknose:

Anyhoo, I am finally feeling better and I hope that you are all getting that way too.

FYI: The one 'MART' that I love is Petsmart. You can even take you pet there. How fun! I can take my doggy and she can pick out her own treats. Now, that is my kind of store!

of course we did...see Taffy thread....:hug:

*leaning in to whisper to FG*

Who's Taffy?

*whispering to AMN*

only she knows who she really is....:rolleyes:

It's Tappy, you fool..:D

(Who's Taffy? They are all so funny!):picknose:

How's the rest of the mangy lot?

I am an idiot! Wait! Whatda you mean you already knew that?

I steamed cleaned the floors w/ a sweat shirt on. Now I am freak'n wiped out. Did you know you can hire nice people to come clean your floors?:mad:

(I told you I am an idiot....;)):deadhorse:

All in favor?

AYE!

Huh? I CAIN'T hear you! My ears are plugged.

(taking fingers from ears) OK, better now.

Aye ~ Aye Sir, errr, I mean AMN!!!! :D

Now let me get this straight. Is that a yes that I should get someone else to do the "Big" cleaning job?:D Or...was that a yes to ...Taffy is an idiot?:mad:

I'm back and I'm beyond exhausted. I was up til 2:30am packing on Friday. The alarm went off at 5am to leave. Slept 30 minutes the whole trip to Iowa. Ran around visiting all Saturday. Wedding on Sunday. Congratulated happy couple, took one picture with them and out the door of the church for the trip home. :eek:

Please don't wake me in the morning. :Zzzz: I'll give details and I have pics if I can get them out of the camera and onto computer. Then I'll figure out how to let you all see them.

Brain dead, heading to bed.
:hug:

Hey Beth, I guess we sort of shared the same kind of Sunday.

Went to my niece's wedding. Didn't get home till 12 midnight.
That for me is a miracle.

The drive to the wedding was 1hr. By the time we got there I was
exausted. If it wasn't my niece that was getting married, I would have
canceled to go.

I am doing much much better since the body shut down. Only got
3 results on the blood tests. They call and say Neg. I ask which test
was this, they reply the one you took. Tell the girl I had twelve vials
taken, so which results are these, she replys "have to check with dr."

It seems they have people working that just make calls to let
you know results that the dr. writes down, but they are not told for what.
I just called the hosp. lab to check why all the results have not
been sent to dr. Have to wait for them to check.

WAIT`WAIT`WAIT` that's what life seems to be anymore.

Jappy :grouphug:

BOTH!! :D:D:D:D :hug:


Geez Beth and Jappy~ You both had quite the day! I'm tired just thinking about it. But, your'e both back where you belong! RIGHT HERE W/US!!!
:grouphug::hug::grouphug::hug:

How'd I miss this????

Hmmmm, I am going to have to save this one for the next time Twippy reminds everyone about the "truck" incident....:p

Corny and Jappy.....:hug:

FG...what Truck? :Scratch-Head:

Good come back...How ya doing there Miss Tap Dance???

Chris!!!!!!
 

Hi Chris. Are you OK? I know you've been suffering from an exacerbation and I would like to know how you are fairing. And, besides that, I miss you a bunch. :hug:

Please report in, when you feel like it.:)

Oh, and all the rest of you old timers here, I would like to hear how you are all doing, too. Now that the UTI is gone, I'm good. <smiles>

I think I'm recovered from Iowa. Two naps a day all week helped. I've got some pics, I just can't figure out how to get you all to see them.

Anyone willing to help technically challenged me?

:hug:

Glad to hear that you are feeling better Sally.

I feel better one day and the next I feel BLAH

This tuesday I go back to the dr. to talk about all the blood
work. Where we go from there ???????????


I have been keeping up with the exercises that they gave me to
do. It is helping a little. Have more time when the pain is less. I guess
also because he has me taking the meds regularly.

Jappy :hug:

Time to bring this one back up!!!

How is everyone?????

I will update you all on me. I am recuperating from the relapse from he!!. I had 3 days of IVSM end of April and am still trying to get over this relapse. I don't think that the trip to Oklahoma to help with my mom (who is terminal) and then the trip to DC helped any, but you gotta do what you gotta do.

It's the fatigue...just can't seem to get past it. I do stuff one day, and spend the next day in bed. I am never one to complain, but this has been ridiculous. Even with 400 mg of Provigil a day, it's not even touching it.

I have been out of the clinical trial since April 1, and technically off whatever I've been on since my last vaccine in September. I have my next blood draw to see if I will get back in the trial on June 27, then it will take a couple of weeks for the test results. Then I have to make a decision on whether or not to wait another 90 days for retest for the MRTCs or pull out of the trial to get back on some sort of treatment.

So...that's what's going on with me...how about the rest of our little group?

Cheryl you do have a load to carry.

I have been having a lot of problems with my stomach again.
Sometimes I wonder if ms has anything to do with it. Start a med.
things seem to go good. Time goes by and BANG here we go again.
I also have been fighting with servere fatigue. I do something
and the rest of the day I only want to sleep. There are more days now
I just don't do anything.

The weather has been miserable. Rain, cold, heavy winds, is this
the end of May or December. I can't wait for the warm weather but
then will be in the house with the AC. One bad thing into another bad
situation.
Hope things start to go a little easier for you. At least we have
all our buddies on NT to vent too. We are the only ones that really
understand what we all are really going through.

Jappy :hug:

Good thinking, FG. Our little band is scattered all over the internet anymore.

After a very, very fun weekend, I have spent the week paying for letting those other people run me ragged. It was so worth it!

I digress, fatigue has been heavy upon me too, and the back spazzes are really hurting me lately. I did get some good sleep last night and feel some more coming on tonight.

Even though it's my tradition to spend M weekend up north, I am hunkered down here to take it easy. Next weekend I have several fundraisers disguised as graduation parties so I need the energy to get in and out of the car 20 times.

Legs: Numb & dumb Hands: Numb and worthless Hair: hurts. Ya' gotta love it.

Next?

Thanks, AVappy..:) It sounds like the word of the day is fatigue. I haven't been going and doing as much as you peeps, but spending money I dont have, on stupid mice deeds, saps the energy right out of me. Other than that, I just have the usual numby, tingly spazy, achy breaky stuff goin on.

I am so sorry you guys are having to pay so dearly for your fun and good deeds..:( I guess that's the price we pay, when we try to be like the normal kids.:mad:

Jappy, hope your tummy heals soon and you feel better. :hug:

Nappy, I hope you re-rev up and feel stronger for all your new ventures. :hug:

AVappy, that flare is getting old and a real PITA, for one as active as you. :mad: .. What Med will you try, if you are out of the trial? :hug:

I am not sure, Sappy...we had been discussing Cytoxan when this trial became available. So, I don't know what I will do. Guess I will cross that bridge when it looms on the horizon.

What FG needs is :sunchair:

What Nappy needs is :sunchair:

What Sappy needs is :sunchair:

What Taffy needs is this school year to be over and :sunchair:

I am freak'n pooped out!

Anyone else need a little :sunchair: ?

(FG...you stop messing around with that relapse. You have had it long enough. Tell it to go away.:mad:)

I'm in total agreement with Tappy here! WE all need:sunchair:

I just cannot seem to get started on anything.

I have the monthly torture going on, along with being in a sort of narcoleptic stage.

When my body says sit and STAY, there's no choice and no time. I can fall asleep in two seconds and I am tired of trying to explain it to all the people who don't understand that I JUST CANNOT DO whatever it is they think I should be doing!

I'm in a sort of fog here and liable to bust out in tears like a little kid who stayed up too long, and for me to admit that just shows how bad it is today. If ANYONE is nice to me I will crumple.

I'd also like it to STOP raining!

How's everyone else?:hug:

I don't want to see you crumble, RW,
so I won't be nice to you..:circlelove: :hug:

Now RW...you just stop that right now....*smack*

It's stopped raining here, finally! :p;)

I can't be nice to River?

Have I ever been nice to River?

(just doing my part to help)

I've got the fatigue thing going this month too. Since my sister went on vaca and I worked at her shop, I've not been able to sleep at night, and yet have been tired and napping in the daytime.

I've finally conquered the migraine (fingers crossed) that has been plaguing me all week. I'm thinking it's chocolate triggered. Waaahhh!:hissyfit::Sob: I've slept nearly 14 hrs straight today, and only woke to take meds. I'm hoping that helped. Dad made me a yummy omlette to settle my tummy upset my too many meds. I feel like a nap now, bummer. :Zzzz:

Our family MD get together is Sunday, that way we can all relax on Monday and eat leftovers. Now why didn't they think of that when I was still working?

Dad's been working on desserts all day. So far he has lemon curd, homemade caramel, phyllo dough, blackberries, pineapple marinating. He never divulges his plan, so I can't even guess how many things he's making. But what I tasted so far was yummy. Good thing Sunday is cheat day. :D

Hope everyone is soon feeling better. Myself included, this added numbness sucketh too!

:hug:

It is now 8:45PM. I got home from my dd's house at 8:00PM. Today
was the day for the biiiig yard sale and bar-b-q. Just sat around and
talked with family and friends and did nothing, but I am hurting so bad
and so tired you would think I ran a maraton or something.

Just sitting here to check up on everyone and say hello before I
get ready for bed is a big chore. I have been making so many mistakes
typing and correcting them. It is taking so long just for this short
hello.

Better quit while I am ahead.

Everyone have a goodnight. The best that you can.

Jappy :grouphug:

I love Lemon Curd!!!

Me too! And Dad says he'll have to double the batch and make lemon meringue pie. And I was like, when?:D

I think it's going in the mini phyllo cups he made. Yum!

:hug:

Ahem,,,,what is lemon curd??

*smack*

What!?! Are you hard of googling or something, Sal? Sheesh, must I do everything around here?

http://www.joyofbaking.com/images/large/lemoncurd.jpg

Thanks, Nappy......Looks weird...how do you make it?
Is it like pudding?

I loves lemon pudding..:p