Chris!!!!!!
 

Hi Chris. Are you OK? I know you've been suffering from an exacerbation and I would like to know how you are fairing. And, besides that, I miss you a bunch. :hug:

Please report in, when you feel like it.:)

Oh, and all the rest of you old timers here, I would like to hear how you are all doing, too. Now that the UTI is gone, I'm good. <smiles>

I think I'm recovered from Iowa. Two naps a day all week helped. I've got some pics, I just can't figure out how to get you all to see them.

Anyone willing to help technically challenged me?

:hug:

Glad to hear that you are feeling better Sally.

I feel better one day and the next I feel BLAH

This tuesday I go back to the dr. to talk about all the blood
work. Where we go from there ???????????


I have been keeping up with the exercises that they gave me to
do. It is helping a little. Have more time when the pain is less. I guess
also because he has me taking the meds regularly.

Jappy :hug:

Time to bring this one back up!!!

How is everyone?????

I will update you all on me. I am recuperating from the relapse from he!!. I had 3 days of IVSM end of April and am still trying to get over this relapse. I don't think that the trip to Oklahoma to help with my mom (who is terminal) and then the trip to DC helped any, but you gotta do what you gotta do.

It's the fatigue...just can't seem to get past it. I do stuff one day, and spend the next day in bed. I am never one to complain, but this has been ridiculous. Even with 400 mg of Provigil a day, it's not even touching it.

I have been out of the clinical trial since April 1, and technically off whatever I've been on since my last vaccine in September. I have my next blood draw to see if I will get back in the trial on June 27, then it will take a couple of weeks for the test results. Then I have to make a decision on whether or not to wait another 90 days for retest for the MRTCs or pull out of the trial to get back on some sort of treatment.

So...that's what's going on with me...how about the rest of our little group?

Cheryl you do have a load to carry.

I have been having a lot of problems with my stomach again.
Sometimes I wonder if ms has anything to do with it. Start a med.
things seem to go good. Time goes by and BANG here we go again.
I also have been fighting with servere fatigue. I do something
and the rest of the day I only want to sleep. There are more days now
I just don't do anything.

The weather has been miserable. Rain, cold, heavy winds, is this
the end of May or December. I can't wait for the warm weather but
then will be in the house with the AC. One bad thing into another bad
situation.
Hope things start to go a little easier for you. At least we have
all our buddies on NT to vent too. We are the only ones that really
understand what we all are really going through.

Jappy :hug:

Good thinking, FG. Our little band is scattered all over the internet anymore.

After a very, very fun weekend, I have spent the week paying for letting those other people run me ragged. It was so worth it!

I digress, fatigue has been heavy upon me too, and the back spazzes are really hurting me lately. I did get some good sleep last night and feel some more coming on tonight.

Even though it's my tradition to spend M weekend up north, I am hunkered down here to take it easy. Next weekend I have several fundraisers disguised as graduation parties so I need the energy to get in and out of the car 20 times.

Legs: Numb & dumb Hands: Numb and worthless Hair: hurts. Ya' gotta love it.

Next?

Thanks, AVappy..:) It sounds like the word of the day is fatigue. I haven't been going and doing as much as you peeps, but spending money I dont have, on stupid mice deeds, saps the energy right out of me. Other than that, I just have the usual numby, tingly spazy, achy breaky stuff goin on.

I am so sorry you guys are having to pay so dearly for your fun and good deeds..:( I guess that's the price we pay, when we try to be like the normal kids.:mad:

Jappy, hope your tummy heals soon and you feel better. :hug:

Nappy, I hope you re-rev up and feel stronger for all your new ventures. :hug:

AVappy, that flare is getting old and a real PITA, for one as active as you. :mad: .. What Med will you try, if you are out of the trial? :hug:

I am not sure, Sappy...we had been discussing Cytoxan when this trial became available. So, I don't know what I will do. Guess I will cross that bridge when it looms on the horizon.

What FG needs is :sunchair:

What Nappy needs is :sunchair:

What Sappy needs is :sunchair:

What Taffy needs is this school year to be over and :sunchair:

I am freak'n pooped out!

Anyone else need a little :sunchair: ?

(FG...you stop messing around with that relapse. You have had it long enough. Tell it to go away.:mad:)

I'm in total agreement with Tappy here! WE all need:sunchair:

I just cannot seem to get started on anything.

I have the monthly torture going on, along with being in a sort of narcoleptic stage.

When my body says sit and STAY, there's no choice and no time. I can fall asleep in two seconds and I am tired of trying to explain it to all the people who don't understand that I JUST CANNOT DO whatever it is they think I should be doing!

I'm in a sort of fog here and liable to bust out in tears like a little kid who stayed up too long, and for me to admit that just shows how bad it is today. If ANYONE is nice to me I will crumple.

I'd also like it to STOP raining!

How's everyone else?:hug: